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More like this: hospitals, october and feelings.
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Courtney Kendrick
Courtney Kendrick • 2 years ago

William was born in October 2010 and appeared to be completely healthy. Two days later, as we were being discharged to go home from the hospital, an observant nurse escorting us to our car noticed Will's breathing was rapid and shallow and his color didn't look right. We returned with her to the nursery and as we watched through the window, a sinking feeling began to set in that something was seriously wrong. A couple of hours later, we were following our 2 day old baby in an ambulance to the local Children's Hospital. Our son was then diagnosed with HLHS and was fighting for his life after going into shock due to lack of blood flow to his body. Will had to recover for 3 weeks before he had his first open heart surgery, the Norwood-Sano. He did amazingly well and was released to go home 5 1/2 weeks after he entered the hospital. He had his 2nd open heart surgery in March 2011 and did wonderfully again and will most likely have his 3rd operation, the Fontan, sometime in the spring of 2013. Will is now a happy and healthy 16 month old and is hitting all of his milestones right on time. Life with a CHD kid is definitely different but it is still wonderful in every way!

  • FamilyLeaf
    FamilyLeaf • 1 year ago

    Such a blessing to hear your genuine love and dedication despite these struggles! Truly inspiring. Thank you for your boldness in sharing - love your blog as well!

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  • Kasey Earnest

    Hi! My name is Kasey Earnest & I live in Mississippi, I am 26 years old & I was born with Tetralogy of Fallot :) Mine wasn't found until my 6 week check-up & I had the shunt procedure done at 3 months & then open heart surgery a month before I turned 5 years old! Today, I am married & have 2 beautiful, perfectly healthy baby boys (a 4-year old, Nate McGee & an almost 8-month old, Devin Troy)! I am not currently on any medications & have very little problems. I see a cardiologist once a year for check-ups! I pray for your sweet Mylah & your family & the long journey you all have ahead of you. While I don't remember my procedures or the grief & pain my parents felt during that time, I am grateful daily to God for all the blessings He has given me & my family! I feel honored to have some kind of a connection to your Mylah, as I have never known another person, or even seen a "real-life picture" of another person with Tetralogy, only read about it in textbooks. Stay strong :)

  • Sara Boggs

    she's beautiful!!!

  • Andrea Smith

    I love that pic Lara, so glad she is doing so good. I hoe to see you guys again soon.

  • Lara H.

    @Kasey...thank you so much for sharing your story! It gives me hope for Mylah's future! We are blessed and pray for her continued health. Please keep in touch through her blog!

  • Katie Boyd

    precious!

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Kaden was born 8 lbs 10 oz on December 5, 2006. He appeared to be a perfectly healthy baby boy up until the day after he was born. On the routine newborn physical the doctors noticed Kaden's color was clammy instead of pink. Hours later he was transported to Sacred Heart Children's Hospital to the NICU and diagnosed with multiple heart defects...including Hypoplastic Left Heart Syndrome. Shortly after being diagnosed he was then transported 400 miles away from home to Winnie Palmer Hospital in Orlando FL where he was stabilized for the first of three open heart surgeries to reconstruct his tiny heart. Kaden had his first surgery "Norwood" at 6 days old, his "Bidirectional Glen" at 4 1/2 months old, and his "Fontan" at 3 1/2 years old.