Progeria patient thanks Selena Gomez in stirring video.
John Tacket (1988 – 2004): The Progeria Research Foundation’s First Youth Ambassador. This interview was taken in 2001 when John was 13 ½ years old. He wanted other kids to know about Progeria, and that he was really no different than other boys his age. John was an amazing young man, whose courage and wonderful sense of humor continues to inspire us all.
Hutchinson-Gilford Progeria Roughly one in four million newborns suffer from Progeria, which is a genetic condition that causes rapid aging. As babies, they maintain a normal appearance, but as they grow older, they develop bulging eyes, protruding ears, small chins, thin noses and poor skin. Their arteries harden, increasing their chances of enduring a heart attack or stroke. People with Progeria typically live until their early-teens, though some can live until the age of 30.
Hats ON for Progeria Day! June 7. Join businesses and schools from around the globe for our inaugural Hats On for Progeria day, a fun way to raise awareness and funds for PRF and all the special children with Progeria. Become an Event Organizer! Host a Hats ON for Progeria event at your school or office. The National Day is Friday, June 7, 2013, but if this date does not work for you, select one that does! You can hold your event ANYTIME in 2013. Click on the link to register your group & start!