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Kari Murphy
Kari Murphy • 35 weeks ago

15 year old girl taken from parents by hospital/DCF who allege that girl does not have mito, but rather pysch illness. DCF placed her in psych ward where she has remained for 9 months. Parents allege kidnapping. This is actually NOT uncommon---has happened across the US for years, due, in part, to the nature of mitochondrial disease which is difficult to dx, and easy to "fake" by parents. Doctors/hospitals worry about MSBP, malingering and over-medicalization. Where is the truth here?

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Mitochondrial Disease

Mito Disease Awareness

typography subway art In the United States, more than 50 million adults suffer from diseases in which mitochondrial dysfunction is involved. Mitochondrial dysfunction is found in diseases as diverse as cancer, infertility, diabetes, heart diseases, blindness deafness, kidney disease, liver disease, stroke, migraine, and the toxicity of HIV and other drugs. Mitochondrial dysfunction is also involved in aging and neurodegenerative diseases such as Parkinson and Alzheimer dementia.

Every 30 minutes a child is born who will develop some form of mitochondrial disease before the age of 10. 80% diagnosed before age 5, will not live beyond there teenage years. There is no treatments, no cure and little awareness! WE ARE GOING TO CHANGE THAT!!! Mito What? Is no longer going to be heard!