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It is critical to use the Brighton criteria for diagnosing Ehlers-Danlos Syndrome – Hypermobility Type (HEDS). The Beighton Score is only PART of the overall diagnostic criteria for HEDS. Remember the difference like this: Using BRIGHTON is a BRIGHT idea; relying on Beighton along will come back to bite you.
Honestly? This terrifies me. Celia is WAY too young to diagnose, but she bruises so easily and her joints are so loose. THIS is why I'm taking her to Chicago. THIS is why I want a concrete diagnosis. THIS.
** The Management of Ehlers-Danlos Syndrome - Now available in our online shop ** This 250-page book is a compilation of 34 chapters written by specialists about their own areas of expertise. Priced at £10 and available here. #EDS #EhlersDanlos #HMS #Hypermobility #EhlersDanlosSyndrome #Vascular