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Becca Stanley
Becca Stanley • 2 years ago

This is our first and only child, our miracle, Eleanor Vivian. We learned of her CHD at 25 weeks of pregnancy. Her prenatal diagnosis was Critical Aortic Stenosis. We were told that she would most likely "spontaneously abort" and that we would have to suffer a stillbirth. Despite this bleak prognosis, she thrived the rest of the pregnancy and was born at 38 weeks via C-section, on October 12, 2010 weighing 7lbs 3oz. She was taken directly to the cath lab where her atrial septum was stented to relieve pressure in her heart and stabilize her until the next step was decided. Once in the cath lab, doctors realized that her defects were actually much more severe than they originally thought. They re-diagnosed her with Shone's Complex with an intact atrial septum. Her doctors went back and forth trying to determine the best course of action. It was finally determined that the surgical options were just not good enough, and that a heart transplant would be her best option. At 10 days old, Eleanor was officially added to the heart transplant waiting list, at the most critical status: 1A. After being on the waiting list exactly 2 months, Eleanor finally got her new heart, on December 22nd, 2010. After 93 days in the hospital, we finally got to take our baby girl home for the first time on January 11th, 2011. She is now a healthy, lively and very happy 15 month old! Our blog: www.ihearteleanor...

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My sweet boy was diagnosed at 5 days old with the congenital heart defects Transposition of the Great Arteries (TGA) and a hole between his ventricles (VSD). We were shocked, to say the least. I had two level 2 sonos in the last two months of my pregnancy and they detected nothing. He underwent his first open heart surgery at 9 days old and his 2nd (due to scar tissue build up from the 1st) at 4 months, 12 days old. He is amazing! With his broken heart, ours were made full and overflowing. He will need at least one other surgery to replace his pulmonary valve and we hope that will be all, but only God knows what the future holds. We are so grateful to have this sweet boy in our lives. CHD Awareness Week is February 7-14. Mamas, if you're pregnant or know someone who is, make sure you ask for (& tell your friends to ask) a pulse oximetry test on your baby- it is painless and non-invasive. It could save their life.

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My sweet boy was diagnosed at 5 days old with the congenital heart defects Transposition of the Great Arteries (TGA) and a hole between his ventricles (VSD). We were shocked, to say the least. I had two level 2 sonos in the last two months of my pregnancy and they detected nothing. He underwent his first open heart surgery at 9 days old and his 2nd (due to scar tissue build up from the 1st) at 4 months, 12 days old. He is amazing! With his broken heart, ours were made full and overflowing. He will need at least one other surgery to replace his pulmonary valve and we hope that will be all, but only God knows what the future holds. We are so grateful to have this sweet boy in our lives. CHD Awareness Week is February 7-14. Mamas, if you're pregnant or know someone who is, make sure you ask for (& tell your friends to ask) a pulse oximetry test on your baby- it is painless and non-invasive. It could save their life.

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