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Ehlers Danlos Syndrome...

Tips, tricks and ideas on ways to make things easier for fal. Whether it's cute clothes to match her AFOs or medical equiptment for her in home therapy room or general supplies

I've always known I was strong just didn't know how strong I really was!

Lol sooo me and fally!! Gorlin Sign Only 10% of the population can touch the tip of their nose with their tongue Common in individuals with Ehlers Danlos syndrome

Ehler Danlos Syndrome - Vascular Type - know the signs!

(EDS) Teenager, 18, is fed through her heart via a drip after being diagnosed with life-threatening tissue disorder But the inspirational teenager today said she refuses to let the illness take over her life and revealed she is determined to remain positive and raise awareness. 'I don't know how long life will be, but I have got the condition for a reason and I just have to fight it and keep happy,' she explained.

I wear stripes for someone special Ehlers Danlos Awareness shirt.

What mum doesn't relate to the title of this blog? Sleepless Nights is Tasmanian writer and mother Veronica Foale's blog about her life dealing with two children on the Autism spectrum; as well, she and her kids have Ehlers Danlos Syndrome, which she also discusses in her blog. It is a real look at mothering children with special needs. No punches are pulled and the dirty bits of motherhood are rarely tidied up, which makes it a refreshingly real read.

WEBSITE: Garment Design for People Living with Ehlers- Danlos Syndrome & Hypermobility: Our aim is to design customized garments for people living with the condition known as EDS.

Ehlers-Danlos Syndrome is a rare syndrome that can cause a defect in the sound conducting mechanism of the middle ear, and which may result in hearing loss.

MAY is NATIONAL EHLERS DANLOS SYNDROME AWARENESS MONTH.. Here is a something I made... It may not be the same for all E.D.S people..

Ehlers-Danlos Syndrome (the connective tissue disorder I have) Great video explaining how my little Fally suffers...help spread awareness

EDS keychain. A symbol of Ehlers-Danlos Syndrome. Show your awareness!

MAY is NATIONAL EHLERS DANLOS SYNDROME AWARENESS MONTH.. Here is a something I made... It may not be the same for all E.D.S people..

The EDS octopus and some of the problems that comes with Ehlers-Danlos Syndrome

Ask someone with Ehlers Danlos Syndrome...Ask a CHILD with Ehlers Danlos syndrome then get back to me about pushing that research for a cure