Oregon Ehlers-Danlos Support Group OREDS Boards

Oregon Ehlers-Danlos Support Group OREDS Boards

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Oregon  ·  THIS PROFILE IS UNDER CONSTRUCTION THROUGH FALL 2014. We look forward to sharing more information about EDS / Ehlers-Danlos Syndrome with you soon.
Oregon Ehlers-Danlos Support Group OREDS Boards
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OREDS Portland, OR Walk & Roll this Saturday, May 17, 2014. Join us to raise awareness for EDS / Ehlers-Danlos Syndrome!

OREDS Portland, OR Walk & Roll this Saturday, May Join us to raise awareness for EDS / Ehlers-Danlos Syndrome!

OREDS Portland, OR Walk & Roll this Saturday, May 17, 2014. Join us to raise awareness for EDS / Ehlers-Danlos Syndrome!

OREDS Portland, OR Walk & Roll this Saturday, May Join us to raise awareness for EDS / Ehlers-Danlos Syndrome!

Herald Sun (Melbourne, Australia) > Maddison Parker wins 2014 Victorian Young Achiever Award for raising awareness of Ehlers Danlos syndrome. May 12, 2014. Profile of two young sisters who are working hard to raise awareness for EDS / Ehlers-Danlos Syndrome.

Herald Sun (Melbourne, Australia) > Maddison Parker wins 2014 Victorian Young Achiever Award for raising awareness of Ehlers Danlos syndrome. May 12, 2014. Profile of two young sisters who are working hard to raise awareness for EDS / Ehlers-Danlos Syndrome.

PsychCentral NeuroTalk Forum > Search results for all threads containing "chiari" in the title. Chiari Malformation is sometimes a complication of EDS / Ehlers-Danlos Syndrome.

PsychCentral NeuroTalk Forum > Search results for all threads containing "chiari" in the title. Chiari Malformation is sometimes a complication of EDS / Ehlers-Danlos Syndrome.

Propublica > A Journalist Explains How To Get Your Story Heard. Notice that 3 out of the last 4 stories OREDS pinned were from Canada? Canadian journalists are doing a great job raising EDS / Ehlers-Danlos Awareness! Click here to learn how you can persuade your local reporters to do the same. They'll be extra receptive during May EDS Awareness Month!!!

A Journalist Explains How To Get Your Story Heard — ProPublica

Propublica > A Journalist Explains How To Get Your Story Heard. Notice that 3 out of the last 4 stories OREDS pinned were from Canada? Canadian journalists are doing a great job raising EDS / Ehlers-Danlos Awareness! Click here to learn how you can persuade your local reporters to do the same. They'll be extra receptive during May EDS Awareness Month!!!

A Journalist Explains How To Get Your Story Heard — ProPublica

SaskLifestyles (Saskatchewan, Canada) > Local resident spreading awareness about rare condition. May 8, 2014. An excellent and informative EDS awareness and profile article. It profiles a woman who raised local awareness which lead to the mayor of her home town to proclaim May as Ehlers-Danlos Syndrome Month in Estevan. Thank you to the mayor and town of Estevan!

SaskLifestyles (Saskatchewan, Canada) > Local resident spreading awareness about rare condition.

Newser (via AP) > Health insurers just say no to medicinal pot coverage due to legal concerns, lack of research. May 8, 2014. An article about how some insurers deny requests due to "conflicting laws." The article includes a caption about a woman with  EDS / Ehlers-Danlos Syndrome.

Newser (via AP) > Health insurers just say no to medicinal pot coverage due to legal concerns, lack of research. May 8, 2014. An article about how some insurers deny requests due to "conflicting laws." The article includes a caption about a woman with EDS / Ehlers-Danlos Syndrome.

Welland Tribune (Ontario, Canada) > School says student with condition can go to prom. May 5, 2014. Profile of a 17 y.o. girl with EDS / Ehlers-Danlos Syndrome and complications of EDS.

Welland Tribune (Ontario, Canada) > School says student with condition can go to prom. May 5, 2014. Profile of a 17 y.o. girl with EDS / Ehlers-Danlos Syndrome and complications of EDS.

Ehler Danlos Syndrome - Vascular Type - know the signs!

EDS IV (VEDS) Awareness Photo - I also have this variety, among others. As a result, a valve in my heart swelled to the point where the doctors were surprised it had not already ruptured.

Dont forget that May is Ehlers-Danlos Awareness month. Tell everyone about it!

Dont forget that May is Ehlers-Danlos Awareness month.

Northumberland News (Cobourg, Canada) > Milton woman turns to positivity to fight Ehlers-Danlos Syndrome. May 1, 2014. Profile of a 31 y.o. woman with Ehlers-Danlos Syndrome (EDS) and gastroesophageal reflux disease (GERD).

Northumberland News (Cobourg, Canada) > Milton woman turns to positivity to fight Ehlers-Danlos Syndrome.