NDDIC's description of ALGS. Checkout the website: http://digestive.niddk.nih.gov/ddiseases/pubs/alagille/

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Children's Hospital of Philadelphia: Good Guy Window Washer

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Get the latest issue of our newsletter - Links4Life - now at http://www.alagille.org.

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Lumena Pharamceuticals announces exciting anti-itching drug trial for ALGS'ers. Check it out: http://lumenapharma.com/trials/

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Read more about the effects of Alagille Syndrome on the eyes at our website: www.alagille.org.

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Just thought we needed this today. Happy day!

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In a study released today, scientists from the University of Pennsylvania School of Veterinary Medicine (UPSVM), explain how the Jagged-1 protein induces mesenchymal stem cells into becoming osteoblasts (bone forming cells). The study has implications in the field of bone regeneration and in the development of new treatments for a rare genetic disease called Alagille syndrome.

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Veronica Sanchez Montano is Fighthing for her Life She was born with alagille syndrome, an extremely rare genetic disorder that has severely damaged her liver. As a child, she lived in another country, and her doctor there said she needed to go to Cuba, Canada or the United States for more in-depth medical care.

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Story about Little Freddie McDonald. Checkout the full story and link on our website. http://www.alagille.org.

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The ALGSA announces our own disease registry! We invite all ALGSers to join, to provide de-identified medical information to the registry to help everyone in the global ALGS community – patients, families, researchers, clinicians, and pharmaceutical companies – learn more about ALGS. Go to our site to learn more.

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