Keeping a sense of humor - craniosynostosis onesies

Keeping a sense of humor - craniosynostosis onesies

I hope our baby won't need this onesie. Mark's and my first haircuts were both by neurosurgeons though.

I hope our baby won't need this onesie. Mark's and my first haircuts were both by neurosurgeons though.

Pssstt.... September is Craniofacial Acceptance Month. Pass it on www.ccakids.org.

Pssstt.... September is Craniofacial Acceptance Month. Pass it on www.ccakids.org.

Raising craniosynostosis awareness and educating others on this birth defect - my son is a cranio kiddo, a cranio suvivor.

Raising craniosynostosis awareness and educating others on this birth defect - my son is a cranio kiddo, a cranio suvivor.

cranio-craniosynostosis-onesies-shirts-skull-surgery-nailed-it.jpg 350×350 pixels

cranio-craniosynostosis-onesies-shirts-skull-surgery-nailed-it.jpg 350×350 pixels

Craniosynostosis | Boston Children's Hospital ~ Craniosynostosis is a condition in which the fibrous joints, called sutures, between the plates of the skull fuse too early during a child’s development.

Craniosynostosis | Boston Children's Hospital ~ Craniosynostosis is a condition in which the fibrous joints, called sutures, between the plates of the skull fuse too early during a child’s development.

I have to make a donation to this group. Craino Care Bears makes care packages to children and their family members who are having "brain" surgery. I have to make a hat or a blanket. This is such a great idea and it just moves me.

I have to make a donation to this group. Craino Care Bears makes care packages to children and their family members who are having "brain" surgery. I have to make a hat or a blanket. This is such a great idea and it just moves me.

You never know how strong you are until being strong is the only choice you have.

You never know how strong you are until being strong is the only choice you have.

On the Other Side of Craniosynostosis

On the Other Side of Craniosynostosis

He smiled. The morning after having his skull partially removed and completely reshaped -- as he began to swell into a chubby version of himself, his eye.

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