Pinterest

Today

Explore

Epidermolysis Bullosa - My Son's Disorder

My son was born with a devastating skin disorder called Epidermolysis Bullosa-the Recessive Dystrophic form. Please learn more at http://blog.ebinfoworld.com

·

1,009 Pins

2w

Collection by

Silvia Corradin

Similar ideas popular now

Skin

I Support The Butterfly Children | Epidermolysis Bullosa Unisex recycled t-shirt #SleepingAngelTreasures #Tshirt Butterfly Kids, Disorders, Sons, T Shirt, Supreme T Shirt, Tee Shirt, My Son, Boys, Children

Butterfly Kids

Disorders

Sons

T Shirt

Supreme T Shirt

Tee Shirt

My Son

Boys

Children

I Support The Butterfly Children | Epidermolysis Bullosa Unisex recycled t-shirt #SleepingAngelTreasures #Tshirt

Sell On Etsy

Unisex

Cotton

Tee

Someone I LOVE Needs a Cure | Epidermolysis Bullosa Short-sleeve unisex t-shirt Gifts For Dog Owners, Old T Shirts, Prism Color, Teacher Shirts, Heart Print, Shirts With Sayings, Special Gifts, Fabric Weights, Gifts For Her

Gifts For Dog Owners

Old T Shirts

Prism Color

Teacher Shirts

Heart Print

Shirts With Sayings

Special Gifts

Fabric Weights

Gifts For Her

Someone I LOVE Needs a Cure | Epidermolysis Bullosa Short-sleeve unisex t-shirt

I Love <3 Someone with Epidermollysis Bullosa | Short-Sleeve Unisex T-Shirt Midnight Kisses, Lets Get Lost, Couple Tshirts, New Year Wishes, Perfect Gift For Him, Cute Images, Birthday Shirts, Slogan

Midnight Kisses

Lets Get Lost

Couple Tshirts

New Year Wishes

Perfect Gift For Him

Cute Images

Birthday Shirts

Slogan

I Love <3 Someone with Epidermollysis Bullosa | Short-Sleeve Unisex T-Shirt

Epidermolysis Bullosa Hero | Women's Relaxed T-Shirt Business Casual, Dress Pants, Casual Looks, Outfit Of The Day, Hero, T Shirts For Women, Mens Tops, How To Wear

Business Casual

Dress Pants

Casual Looks

Outfit Of The Day

Hero

T Shirts For Women

Mens Tops

How To Wear

Epidermolysis Bullosa Hero | Women's Relaxed T-Shirt

We love the Butterfly Children Disney Characters, Fictional Characters, Aurora Sleeping Beauty, Disney Princess, Art, Art Background, Kunst, Performing Arts

Disney Characters

Fictional Characters

Aurora Sleeping Beauty

Disney Princess

Art

Art Background

Kunst

Performing Arts

We love the Butterfly Children

Silvia Corradin

Epidermolysis Bullosa - My Son's Disorder

I love, respect and admire someone with EB. #epidermolysisbullosa #EBawareness Respect, Love, Learning, Amor, Studying, Teaching, Onderwijs

Respect

Love

Learning

Amor

Studying

Teaching

Onderwijs

I love, respect and admire someone with EB. #epidermolysisbullosa #EBawareness

Silvia Corradin

Epidermolysis Bullosa - My Son's Disorder

North Face Logo

The North Face

Everything

Conditioner

Wellness

Epidermolysis Bullosa is NOT less important because it's less well known. Awareness is everything.

Silvia Corradin

Epidermolysis Bullosa - My Son's Disorder

Epidermolysis Bullosa can be mentally, emotionally and physically exhausting. Be kind. Be patient. Be supportive. Canning, Home Canning, Conservation

Canning

Home Canning

Conservation

Epidermolysis Bullosa can be mentally, emotionally and physically exhausting. Be kind. Be patient. Be supportive.

Silvia Corradin

Epidermolysis Bullosa - My Son's Disorder

Epidermolysis Bullosa Awareness Waffles, Breakfast, Food, Morning Coffee, Essen, Waffle, Meals, Yemek, Eten

Waffles

Breakfast

Food

Morning Coffee

Essen

Waffle

Meals

Yemek

Eten

Epidermolysis Bullosa Awareness

Silvia Corradin

Epidermolysis Bullosa - My Son's Disorder

Epidermolysis Bullosa Awareness #epidermolysisbullosa #ebawareness #cureeb #recessivedystrophicepidermolysisbullosa #rdeb #wounds #blisters #eblife #lifewitheb #bandages #gauze #blisteringcondition #raredisease #raredisorder #skindisorder #ebwarriors #stopeb #ebresearch @ebresearch #wefighteb @wefighteb #ebmrf @ebmrf #ebsucks #healeb #geneticdisorder #rarediseaseadvocate #fighteb #butterflychildren #disability #chronicpain #chronicillness #medicallyfragile Drunk Dancing, Rare Disorders, Writing Humor, One Wish, Writers Write, Funny Cat Pictures, Marketing Plan, Funny Memes

Drunk Dancing

Rare Disorders

Writing Humor

One Wish

Writers Write

Funny Cat Pictures

Marketing Plan

Funny Memes

Epidermolysis Bullosa Awareness #epidermolysisbullosa #ebawareness #cureeb #recessivedystrophicepidermolysisbullosa #rdeb #wounds #blisters #eblife #lifewitheb #bandages #gauze #blisteringcondition #raredisease #raredisorder #skindisorder #ebwarriors #stopeb #ebresearch @ebresearch #wefighteb @wefighteb #ebmrf @ebmrf #ebsucks #healeb #geneticdisorder #rarediseaseadvocate #fighteb #butterflychildren #disability #chronicpain #chronicillness #medicallyfragile

Silvia Corradin

Epidermolysis Bullosa - My Son's Disorder

Please Remember: if a person is using a disability aid or other assisstive device, is likely because they need it! Even if they don't use the device 100 percent of the time, that doesn't invalidate their need for it, and it doesn't mean they're "faking" or "being dramatic". Being Used, The 100, Disability, Memes, Meme

Being Used

The 100

Disability

Memes

Meme

Please Remember: if a person is using a disability aid or other assisstive device, is likely because they need it! Even if they don't use the device 100 percent of the time, that doesn't invalidate their need for it, and it doesn't mean they're "faking" or "being dramatic".

Silvia Corradin

Epidermolysis Bullosa - My Son's Disorder

Have you tried eating after burning your mouth on a hot drink or with an ulcer? Pretty painful, isn't it? Epidermolysis Bullosa causes blisters and wounds in the mouth and down the esophagust making eating very painful - every day. Have You Tried, Burns, Drinks, Pretty, Hot, Drinking, Beverages, Drink

Have You Tried

Burns

Drinks

Pretty

Hot

Drinking

Beverages

Drink

Have you tried eating after burning your mouth on a hot drink or with an ulcer? Pretty painful, isn't it? Epidermolysis Bullosa causes blisters and wounds in the mouth and down the esophagust making eating very painful - every day.

Silvia Corradin

Epidermolysis Bullosa - My Son's Disorder

My body is my closest companion so why not love it unconditionally? ~Lena Riedl #epidermolysisbullosa #ebawareness

My body is my closest companion so why not love it unconditionally? ~Lena Riedl #epidermolysisbullosa #ebawareness

Silvia Corradin

Epidermolysis Bullosa - My Son's Disorder

Epidermolysis Bullosa Awareness #epidermolysisbullosa #ebawareness #cureeb #recessivedystrophicepidermolysisbullosa #rdeb #wounds #blisters #eblife #lifewitheb #bandages #gauze #blisteringcondition #raredisease #raredisorder #skindisorder #ebwarriors #stopeb #ebresearch @ebresearch #wefighteb @wefighteb #ebmrf @ebmrf #ebsucks #healeb #geneticdisorder #rarediseaseadvocate #fighteb #butterflychildren #disability #chronicpain #chronicillness #medicallyfragile #disabilityawareness #dermatology Glee Cory Monteith, Disability Awareness, Rare Disease, Champs, Football Helmets, The Cure

Glee Cory Monteith

Disability Awareness

Rare Disease

Champs

Football Helmets

The Cure

Epidermolysis Bullosa Awareness #epidermolysisbullosa #ebawareness #cureeb #recessivedystrophicepidermolysisbullosa #rdeb #wounds #blisters #eblife #lifewitheb #bandages #gauze #blisteringcondition #raredisease #raredisorder #skindisorder #ebwarriors #stopeb #ebresearch @ebresearch #wefighteb @wefighteb #ebmrf @ebmrf #ebsucks #healeb #geneticdisorder #rarediseaseadvocate #fighteb #butterflychildren #disability #chronicpain #chronicillness #medicallyfragile #disabilityawareness #dermatology

Silvia Corradin

Epidermolysis Bullosa - My Son's Disorder

Epidermolysis Bullosa is rare. But the rarity doesn't mean we shouldn't care. Not only because those diagnosed with EB in general suffer treatly, but because the research involved will cu re not only EB, but so many other rare diseases and disorders that right now have absolutely zero hope. Right Now, Rarity, Zero

Right Now

Rarity

Zero

Epidermolysis Bullosa is rare. But the rarity doesn't mean we shouldn't care. Not only because those diagnosed with EB in general suffer treatly, but because the research involved will cu re not only EB, but so many other rare diseases and disorders that right now have absolutely zero hope.

Silvia Corradin

Epidermolysis Bullosa - My Son's Disorder

Kids with Epidermolysis Bullosa are called "Butterfly Children", because their skin is said to be as fragile as the wings of a butterfly. But butterflies aren't just fragile; they're beautiful, resilient and can fly - just like our #EBsuperheroes Sayings, Butterflies, Beautiful, Lyrics, Butterfly, Quotations, Idioms, Quote

Sayings

Butterflies

Beautiful

Lyrics

Butterfly

Quotations

Idioms

Quote

Kids with Epidermolysis Bullosa are called "Butterfly Children", because their skin is said to be as fragile as the wings of a butterfly. But butterflies aren't just fragile; they're beautiful, resilient and can fly - just like our #EBsuperheroes

Silvia Corradin

Epidermolysis Bullosa - My Son's Disorder

Recessive Dystrophic Epidermolysis Bullosa

Recessive Dystrophic Epidermolysis Bullosa

Silvia Corradin

Epidermolysis Bullosa - My Son's Disorder

Instead of saying "You poor thing" you could say: "Wow, you are so strong for having to go through all of that." I'm not a weak "poor thing." I'm strong. Epidermolysis Bullosa Awareness #ebawareness Say You, Strong, Proverbs

Say You

Strong

Proverbs

Instead of saying "You poor thing" you could say: "Wow, you are so strong for having to go through all of that." I'm not a weak "poor thing." I'm strong. Epidermolysis Bullosa Awareness #ebawareness

Silvia Corradin

Epidermolysis Bullosa - My Son's Disorder

At what point do EB parents get an honorary medical degree? Just wondering... the amount of terms we can now understand is crazy! Parents, Medical, Dads, Medicine

Parents

Medical

Dads

Medicine

At what point do EB parents get an honorary medical degree? Just wondering... the amount of terms we can now understand is crazy!

Silvia Corradin

Epidermolysis Bullosa - My Son's Disorder

They are in so much pain from the day they're born and they have to wear bandages and they're just the bravest kids. So, it co uld be eradicated... it's they just need money. And so I thought, well, I can help with that. ~Leslie Jordan Leslie Jordan, Brave Kids, Need Money, I Can, Thoughts

Leslie Jordan

Brave Kids

Need Money

I Can

Thoughts

They are in so much pain from the day they're born and they have to wear bandages and they're just the bravest kids. So, it co uld be eradicated... it's they just need money. And so I thought, well, I can help with that. ~Leslie Jordan

Silvia Corradin

Epidermolysis Bullosa - My Son's Disorder

Butterfly Talk - Why is the Ribbon for EB (Epidermolysis Bullosa) Red an... The Creator, Ribbon, Red, Tape, Band

The Creator

Ribbon

Red

Tape

Band

Butterfly Talk - Why is the Ribbon for EB (Epidermolysis Bullosa) Red an...

When I look in the mirror, when I feel pain, when I ask myself “why me”, every moment I live with EB, which is an unchanging fact of my life, motivates me to make a career related to EB. It is this disease that limits and motivates me in certain matters in life. #epidermolysisbullosa #ebawareness Look In The Mirror, Of My Life, Career, Study, Facts, In This Moment, Motivation, Feelings

Look In The Mirror

Of My Life

Career

Study

Facts

In This Moment

Motivation

Feelings

When I look in the mirror, when I feel pain, when I ask myself “why me”, every moment I live with EB, which is an unchanging fact of my life, motivates me to make a career related to EB. It is this disease that limits and motivates me in certain matters in life. #epidermolysisbullosa #ebawareness

Silvia Corradin

Epidermolysis Bullosa - My Son's Disorder