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Epidermolysis Bullosa - My Son's Disorder
My son was born with a devastating skin disorder called Epidermolysis Bullosa-the Recessive Dystrophic form. Please learn more at http://blog.ebinfoworld.com
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Silvia Corradin
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I Support The Butterfly Children | Epidermolysis Bullosa Unisex recycled t-shirt #SleepingAngelTreasures #Tshirt
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Someone I LOVE Needs a Cure | Epidermolysis Bullosa Short-sleeve unisex t-shirt
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I Love <3 Someone with Epidermollysis Bullosa | Short-Sleeve Unisex T-Shirt
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Epidermolysis Bullosa Hero | Women's Relaxed T-Shirt
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We love the Butterfly Children
Silvia Corradin
Epidermolysis Bullosa - My Son's Disorder
Respect
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Onderwijs
I love, respect and admire someone with EB. #epidermolysisbullosa #EBawareness
Silvia Corradin
Epidermolysis Bullosa - My Son's Disorder
North Face Logo
The North Face
Everything
Conditioner
Wellness
Epidermolysis Bullosa is NOT less important because it's less well known. Awareness is everything.
Silvia Corradin
Epidermolysis Bullosa - My Son's Disorder
Canning
Home Canning
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Epidermolysis Bullosa can be mentally, emotionally and physically exhausting. Be kind. Be patient. Be supportive.
Silvia Corradin
Epidermolysis Bullosa - My Son's Disorder
Waffles
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Epidermolysis Bullosa Awareness
Silvia Corradin
Epidermolysis Bullosa - My Son's Disorder
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Epidermolysis Bullosa Awareness #epidermolysisbullosa #ebawareness #cureeb #recessivedystrophicepidermolysisbullosa #rdeb #wounds #blisters #eblife #lifewitheb #bandages #gauze #blisteringcondition #raredisease #raredisorder #skindisorder #ebwarriors #stopeb #ebresearch @ebresearch #wefighteb @wefighteb #ebmrf @ebmrf #ebsucks #healeb #geneticdisorder #rarediseaseadvocate #fighteb #butterflychildren #disability #chronicpain #chronicillness #medicallyfragile
Silvia Corradin
Epidermolysis Bullosa - My Son's Disorder
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Please Remember: if a person is using a disability aid or other assisstive device, is likely because they need it! Even if they don't use the device 100 percent of the time, that doesn't invalidate their need for it, and it doesn't mean they're "faking" or "being dramatic".
Silvia Corradin
Epidermolysis Bullosa - My Son's Disorder
Have You Tried
Burns
Drinks
Pretty
Hot
Drinking
Beverages
Drink
Have you tried eating after burning your mouth on a hot drink or with an ulcer? Pretty painful, isn't it? Epidermolysis Bullosa causes blisters and wounds in the mouth and down the esophagust making eating very painful - every day.
Silvia Corradin
Epidermolysis Bullosa - My Son's Disorder
My body is my closest companion so why not love it unconditionally? ~Lena Riedl #epidermolysisbullosa #ebawareness
Silvia Corradin
Epidermolysis Bullosa - My Son's Disorder
Glee Cory Monteith
Disability Awareness
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Champs
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The Cure
Epidermolysis Bullosa Awareness #epidermolysisbullosa #ebawareness #cureeb #recessivedystrophicepidermolysisbullosa #rdeb #wounds #blisters #eblife #lifewitheb #bandages #gauze #blisteringcondition #raredisease #raredisorder #skindisorder #ebwarriors #stopeb #ebresearch @ebresearch #wefighteb @wefighteb #ebmrf @ebmrf #ebsucks #healeb #geneticdisorder #rarediseaseadvocate #fighteb #butterflychildren #disability #chronicpain #chronicillness #medicallyfragile #disabilityawareness #dermatology
Silvia Corradin
Epidermolysis Bullosa - My Son's Disorder
Right Now
Rarity
Zero
Epidermolysis Bullosa is rare. But the rarity doesn't mean we shouldn't care. Not only because those diagnosed with EB in general suffer treatly, but because the research involved will cu re not only EB, but so many other rare diseases and disorders that right now have absolutely zero hope.
Silvia Corradin
Epidermolysis Bullosa - My Son's Disorder
Sayings
Butterflies
Beautiful
Lyrics
Butterfly
Quotations
Idioms
Quote
Kids with Epidermolysis Bullosa are called "Butterfly Children", because their skin is said to be as fragile as the wings of a butterfly. But butterflies aren't just fragile; they're beautiful, resilient and can fly - just like our #EBsuperheroes
Silvia Corradin
Epidermolysis Bullosa - My Son's Disorder
It Netflix
Free Netflix Account
You Meme
Me Too Meme
Memes Gratis
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Writing Memes
When the school calls... and they understand nothing about epidermolysis bullosa.
Silvia Corradin
Epidermolysis Bullosa - My Son's Disorder
Recessive Dystrophic Epidermolysis Bullosa
Silvia Corradin
Epidermolysis Bullosa - My Son's Disorder
Say You
Strong
Proverbs
Instead of saying "You poor thing" you could say: "Wow, you are so strong for having to go through all of that." I'm not a weak "poor thing." I'm strong. Epidermolysis Bullosa Awareness #ebawareness
Silvia Corradin
Epidermolysis Bullosa - My Son's Disorder
Parents
Medical
Dads
Medicine
At what point do EB parents get an honorary medical degree? Just wondering... the amount of terms we can now understand is crazy!
Silvia Corradin
Epidermolysis Bullosa - My Son's Disorder
Leslie Jordan
Brave Kids
Need Money
I Can
Thoughts
They are in so much pain from the day they're born and they have to wear bandages and they're just the bravest kids. So, it co uld be eradicated... it's they just need money. And so I thought, well, I can help with that. ~Leslie Jordan
Silvia Corradin
Epidermolysis Bullosa - My Son's Disorder
Flörsheim Am Main
Gyan Prakash
Bad Schwalbach
Accusations
Allegedly
Coups
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Roman
Detective
Cure Epidermolysis Bullosa #cureEB #epidermolysisbullosa #ebawareness
Silvia Corradin
Epidermolysis Bullosa - My Son's Disorder
The Creator
Ribbon
Red
Tape
Band
Butterfly Talk - Why is the Ribbon for EB (Epidermolysis Bullosa) Red an...
Look In The Mirror
Of My Life
Career
Study
Facts
In This Moment
Motivation
Feelings
When I look in the mirror, when I feel pain, when I ask myself “why me”, every moment I live with EB, which is an unchanging fact of my life, motivates me to make a career related to EB. It is this disease that limits and motivates me in certain matters in life. #epidermolysisbullosa #ebawareness
Silvia Corradin
Epidermolysis Bullosa - My Son's Disorder