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Epidermolysis Bullosa - My Son's Disorder

My son was born with a devastating skin disorder called Epidermolysis Bullosa-the Recessive Dystrophic form. Please learn more at http://blog.ebinfoworld.com
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Epidermolysis Bullosa (EB) with Sylvia Corradin by The Mark White Show on SoundCloud I Need Help, Sylvia, Soundcloud, Networking, Marks, Learning, White, Studying
Epidermolysis Bullosa (EB) with Sylvia Corradin by The Mark White Show on SoundCloud
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I Fight EB | Epidermolysis Bullosa Short-Sleeve Unisex T-Shirt
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I love, respect and admire someone with EB. #epidermolysisbullosa #EBawareness
Epidermolysis Bullosa is NOT less important because it's less well known. Awareness is everything. The North Face Logo, Retail Logos, Everything, Wellness, Conditioner, ? Logo
Epidermolysis Bullosa is NOT less important because it's less well known. Awareness is everything.
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Epidermolysis Bullosa can be mentally, emotionally and physically exhausting. Be kind. Be patient. Be supportive.
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Please Remember: if a person is using a disability aid or other assisstive device, is likely because they need it! Even if they don't use the device 100 percent of the time, that doesn't invalidate their need for it, and it doesn't mean they're "faking" or "being dramatic". Need This, Being Used, The 100, Remember, Disability, 100 Percent, Memes, Person
Please Remember: if a person is using a disability aid or other assisstive device, is likely because they need it! Even if they don't use the device 100 percent of the time, that doesn't invalidate their need for it, and it doesn't mean they're "faking" or "being dramatic".
Have you tried eating after burning your mouth on a hot drink or with an ulcer? Pretty painful, isn't it? Epidermolysis Bullosa causes blisters and wounds in the mouth and down the esophagust making eating very painful - every day. Have You Tried, Ulcers, Wounds, Burns, Mouth, Drinks, Pretty, Drinking
Have you tried eating after burning your mouth on a hot drink or with an ulcer? Pretty painful, isn't it? Epidermolysis Bullosa causes blisters and wounds in the mouth and down the esophagust making eating very painful - every day.
My body is my closest companion so why not love it unconditionally? ~Lena Riedl #epidermolysisbullosa #ebawareness Lena, Companion, Body
My body is my closest companion so why not love it unconditionally? ~Lena Riedl #epidermolysisbullosa #ebawareness