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Epidermolysis Bullosa - My Son's Disorder

My son was born with a devastating skin disorder called Epidermolysis Bullosa-the Recessive Dystrophic form. Please learn more at http://blog.ebinfoworld.com

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Silvia Corradin

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I Support Epidermolysis Bullosa Awareness | Short-Sleeve Unisex T-Shirt #SleepingAngelTreasures #Tshirt Colorful Shirts, Unisex, Shoulder Taping, Spun Cotton, Stitching, Sleeves, Mens Tops, T Shirt, Comfy

Colorful Shirts

Shoulder Taping

I Support Epidermolysis Bullosa Awareness | Short-Sleeve Unisex T-Shirt #SleepingAngelTreasures #Tshirt

I Support Epidermolysis Bullosa Awareness | Short-Sleeve Unisex T-Shirt

I Support The Butterfly Children | Epidermolysis Bullosa Unisex recycled t-shirt #SleepingAngelTreasures #Tshirt Recycled T Shirts, Recycled Fabric, Ethical Fashion, Womens Fashion, Butterfly Kids, Time 7, Rib Knit, Fabric Weights

Recycled T Shirts

Recycled Fabric

Ethical Fashion

I Support The Butterfly Children | Epidermolysis Bullosa Unisex recycled t-shirt #SleepingAngelTreasures #Tshirt

I Support The Butterfly Children | Epidermolysis Bullosa Unisex recycled t-shirt

Neckline, Sport, Dark, Ring

Someone I LOVE Needs a Cure | Epidermolysis Bullosa Short-sleeve unisex t-shirt First Mothers Day Gifts, Gifts For Dog Owners, Old T Shirts, Mama Shirt, Prism Color, Teacher Shirts, Ash Color, Shirts With Sayings

First Mothers Day Gifts

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Shirts With Sayings

Someone I LOVE Needs a Cure | Epidermolysis Bullosa Short-sleeve unisex t-shirt

I Love <3 Someone with Epidermollysis Bullosa | Short-Sleeve Unisex T-Shirt Jesus Shirts, Midnight Kisses, Young T, Couple Tshirts, New Year Wishes, Coffee Design, Lovers

Midnight Kisses

New Year Wishes

I Love <3 Someone with Epidermollysis Bullosa | Short-Sleeve Unisex T-Shirt

Epidermolysis Bullosa Hero | Women's Relaxed T-Shirt Business Casual, Dress Pants, Casual Looks, Outfit Of The Day, Hero, T Shirts For Women, How To Wear

Business Casual

Outfit Of The Day

T Shirts For Women

Epidermolysis Bullosa Hero | Women's Relaxed T-Shirt

We love the Butterfly Children Disney Characters, Fictional Characters, Aurora Sleeping Beauty, Disney Princess, Art, Art Background, Kunst, Performing Arts

Disney Characters

Fictional Characters

Aurora Sleeping Beauty

Disney Princess

Performing Arts

We love the Butterfly Children

Silvia Corradin

Silvia Corradin

Epidermolysis Bullosa - My Son's Disorder

I love, respect and admire someone with EB. #epidermolysisbullosa #EBawareness Disorders, Respect, Love, Learning, Amor, Studying, Teaching, Onderwijs

I love, respect and admire someone with EB. #epidermolysisbullosa #EBawareness

Silvia Corradin

Silvia Corradin

Epidermolysis Bullosa - My Son's Disorder

North Face Logo

Epidermolysis Bullosa is NOT less important because it's less well known. Awareness is everything.

Silvia Corradin

Silvia Corradin

Epidermolysis Bullosa - My Son's Disorder

Epidermolysis Bullosa can be mentally, emotionally and physically exhausting. Be kind. Be patient. Be supportive. Sons, Canning, My Son, Home Canning, Boys, Children, Conservation

Epidermolysis Bullosa can be mentally, emotionally and physically exhausting. Be kind. Be patient. Be supportive.

Silvia Corradin

Silvia Corradin

Epidermolysis Bullosa - My Son's Disorder

Epidermolysis Bullosa Awareness Waffles, Breakfast, Food, Morning Coffee, Essen, Waffle, Meals, Yemek, Eten

Epidermolysis Bullosa Awareness

Silvia Corradin

Silvia Corradin

Epidermolysis Bullosa - My Son's Disorder

Epidermolysis Bullosa Awareness #epidermolysisbullosa #ebawareness #cureeb #recessivedystrophicepidermolysisbullosa #rdeb #wounds #blisters #eblife #lifewitheb #bandages #gauze #blisteringcondition #raredisease #raredisorder #skindisorder #ebwarriors #stopeb #ebresearch @ebresearch #wefighteb @wefighteb #ebmrf @ebmrf #ebsucks #healeb #geneticdisorder #rarediseaseadvocate #fighteb #butterflychildren #disability #chronicpain #chronicillness #medicallyfragile Drunk Dancing, Rare Disorders, Writing Humor, One Wish, Writers Write, Funny Cat Pictures, Marketing Plan, Funny Memes

Funny Cat Pictures

Epidermolysis Bullosa Awareness #epidermolysisbullosa #ebawareness #cureeb #recessivedystrophicepidermolysisbullosa #rdeb #wounds #blisters #eblife #lifewitheb #bandages #gauze #blisteringcondition #raredisease #raredisorder #skindisorder #ebwarriors #stopeb #ebresearch @ebresearch #wefighteb @wefighteb #ebmrf @ebmrf #ebsucks #healeb #geneticdisorder #rarediseaseadvocate #fighteb #butterflychildren #disability #chronicpain #chronicillness #medicallyfragile

Silvia Corradin

Silvia Corradin

Epidermolysis Bullosa - My Son's Disorder

Please Remember: if a person is using a disability aid or other assisstive device, is likely because they need it! Even if they don't use the device 100 percent of the time, that doesn't invalidate their need for it, and it doesn't mean they're "faking" or "being dramatic". Being Used, The 100, Disability, Memes, Meme

Please Remember: if a person is using a disability aid or other assisstive device, is likely because they need it! Even if they don't use the device 100 percent of the time, that doesn't invalidate their need for it, and it doesn't mean they're "faking" or "being dramatic".

Silvia Corradin

Silvia Corradin

Epidermolysis Bullosa - My Son's Disorder

Have you tried eating after burning your mouth on a hot drink or with an ulcer? Pretty painful, isn't it? Epidermolysis Bullosa causes blisters and wounds in the mouth and down the esophagust making eating very painful - every day. Have You Tried, Burns, Drinks, Pretty, Hot, Drinking, Beverages, Drink

Have you tried eating after burning your mouth on a hot drink or with an ulcer? Pretty painful, isn't it? Epidermolysis Bullosa causes blisters and wounds in the mouth and down the esophagust making eating very painful - every day.

Silvia Corradin

Silvia Corradin

Epidermolysis Bullosa - My Son's Disorder

My body is my closest companion so why not love it unconditionally? ~Lena Riedl #epidermolysisbullosa #ebawareness

My body is my closest companion so why not love it unconditionally? ~Lena Riedl #epidermolysisbullosa #ebawareness

Silvia Corradin

Silvia Corradin

Epidermolysis Bullosa - My Son's Disorder

Epidermolysis Bullosa Awareness #epidermolysisbullosa #ebawareness #cureeb #recessivedystrophicepidermolysisbullosa #rdeb #wounds #blisters #eblife #lifewitheb #bandages #gauze #blisteringcondition #raredisease #raredisorder #skindisorder #ebwarriors #stopeb #ebresearch @ebresearch #wefighteb @wefighteb #ebmrf @ebmrf #ebsucks #healeb #geneticdisorder #rarediseaseadvocate #fighteb #butterflychildren #disability #chronicpain #chronicillness #medicallyfragile #disabilityawareness #dermatology Glee Cory Monteith, Disability Awareness, Rare Disease, Champs, Football Helmets, The Cure

Glee Cory Monteith

Disability Awareness

Football Helmets

Epidermolysis Bullosa Awareness #epidermolysisbullosa #ebawareness #cureeb #recessivedystrophicepidermolysisbullosa #rdeb #wounds #blisters #eblife #lifewitheb #bandages #gauze #blisteringcondition #raredisease #raredisorder #skindisorder #ebwarriors #stopeb #ebresearch @ebresearch #wefighteb @wefighteb #ebmrf @ebmrf #ebsucks #healeb #geneticdisorder #rarediseaseadvocate #fighteb #butterflychildren #disability #chronicpain #chronicillness #medicallyfragile #disabilityawareness #dermatology

Silvia Corradin

Silvia Corradin

Epidermolysis Bullosa - My Son's Disorder

Epidermolysis Bullosa is rare. But the rarity doesn't mean we shouldn't care. Not only because those diagnosed with EB in general suffer treatly, but because the research involved will cu re not only EB, but so many other rare diseases and disorders that right now have absolutely zero hope. Right Now, Rarity, Zero

Epidermolysis Bullosa is rare. But the rarity doesn't mean we shouldn't care. Not only because those diagnosed with EB in general suffer treatly, but because the research involved will cu re not only EB, but so many other rare diseases and disorders that right now have absolutely zero hope.

Silvia Corradin

Silvia Corradin

Epidermolysis Bullosa - My Son's Disorder

Kids with Epidermolysis Bullosa are called "Butterfly Children", because their skin is said to be as fragile as the wings of a butterfly. But butterflies aren't just fragile; they're beautiful, resilient and can fly - just like our #EBsuperheroes Wings, Butterflies, Beautiful, Butterfly, Feathers, Feather, Ali

Kids with Epidermolysis Bullosa are called "Butterfly Children", because their skin is said to be as fragile as the wings of a butterfly. But butterflies aren't just fragile; they're beautiful, resilient and can fly - just like our #EBsuperheroes

Silvia Corradin

Silvia Corradin

Epidermolysis Bullosa - My Son's Disorder

Recessive Dystrophic Epidermolysis Bullosa

Recessive Dystrophic Epidermolysis Bullosa

Silvia Corradin

Silvia Corradin

Epidermolysis Bullosa - My Son's Disorder

Instead of saying "You poor thing" you could say: "Wow, you are so strong for having to go through all of that." I'm not a weak "poor thing." I'm strong. Epidermolysis Bullosa Awareness #ebawareness Say You, Strong, Sayings, Lyrics, Quotations, Idioms, Quote, Proverbs

Instead of saying "You poor thing" you could say: "Wow, you are so strong for having to go through all of that." I'm not a weak "poor thing." I'm strong. Epidermolysis Bullosa Awareness #ebawareness

Silvia Corradin

Silvia Corradin

Epidermolysis Bullosa - My Son's Disorder

At what point do EB parents get an honorary medical degree? Just wondering... the amount of terms we can now understand is crazy! Parents, Medical, Dads, Medicine

At what point do EB parents get an honorary medical degree? Just wondering... the amount of terms we can now understand is crazy!

Silvia Corradin

Silvia Corradin

Epidermolysis Bullosa - My Son's Disorder

They are in so much pain from the day they're born and they have to wear bandages and they're just the bravest kids. So, it co uld be eradicated... it's they just need money. And so I thought, well, I can help with that. ~Leslie Jordan Leslie Jordan, Brave Kids, Need Money, I Can, Thoughts

They are in so much pain from the day they're born and they have to wear bandages and they're just the bravest kids. So, it co uld be eradicated... it's they just need money. And so I thought, well, I can help with that. ~Leslie Jordan

Silvia Corradin

Silvia Corradin

Epidermolysis Bullosa - My Son's Disorder

Cure Epidermolysis Bullosa #cureEB #epidermolysisbullosa #ebawareness Flörsheim Am Main, Gyan Prakash, Bad Schwalbach, Man Kill, Coups, Allegedly, Accusations, Tricks

Flörsheim Am Main

Cure Epidermolysis Bullosa #cureEB #epidermolysisbullosa #ebawareness

Silvia Corradin

Silvia Corradin

Epidermolysis Bullosa - My Son's Disorder

Butterfly Talk - Why is the Ribbon for EB (Epidermolysis Bullosa) Red an... The Creator, Ribbon, Red, Tape, Band

Butterfly Talk - Why is the Ribbon for EB (Epidermolysis Bullosa) Red an...