Epidermolysis Bullosa - My Son's Disorder

Collection by Silvia Corradin • Last updated 1 day ago

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My son was born with a devastating skin disorder called Epidermolysis Bullosa-the Recessive Dystrophic form. Please learn more at http://blog.ebinfoworld.com

Cure Epidermolysis Bullosa #epidermolysisbullosa #cureEB #ebawareness

Cure Epidermolysis Bullosa #EpidermolysisBullosa #cureEB #EBawareness

We do hard things. We overcome. We persist. But that does not mean we don't experience the difficult emotions and hardships that come with the life of medical complexity.

HIgh Five!!! To all the moms, dads, brothers, sisters, grandmas, grandpas, caregivers, teachers who love someone with EB. You ROCK!!! #epidermolysisbullosa #ebawareness

Health Insurance Politicians Disorders Health Care Learning Happy Life Health Insurance Coverage Studying

I am not politician, and I will not pretend to know the ins and outs of privatized Health Insurance, Medicaid, Medicare, or Universal Healthcare. People should hever be put in this kind of situation. You should never be just one diagnosis away from destitution. Forget about the unalienable rights to liberty and the pursuit of happiness. Can we back up to the right to life?

My Children Disorders The Cure Science Learning My Boys Studying Teaching Onderwijs

Waiting for science to find a cure or significant treatment while time takes its toll on my child, is the hardest waiting in the world. ~Silvia Corradin #epidermolysisbullosa #cureEB #healeb #ebresearch

Faith Hope Love Greater Than Love Is All Disorders Learning Studying Teaching Onderwijs

Faith, Hope, Love are all greater than Epidermolysis Bullosa #EBawareness

Disorders Learning Words Day How To Make Studying Teaching Horse Onderwijs

Someone with Epidermolysis Bullosa makes me proud every day.

Disorders Sons Learning Studying My Son Teaching Boys Children Onderwijs

I <3 someone with Epidermolysis Bullosa #epidermolysisbullosa #EBawareness

We Remember Disorders Strength Learning Studying Teaching Onderwijs Electric Power

#EpidermolysisBullosa #EBawareness

Be Kind To Yourself Still Have Its Okay Disorders Learning Life Too Nice Its Ok Studying

Be kind to yourself. It's okay to grieve. Remember that you can still have a life. Find a new normal and seek support from others. #EBawareness #EpidermolysisBullosa

Non Stop Unconditional Love Loyalty Happy Mothers Day Disorders Strength Personal Care Feelings Learning

Happy Mother's Day! #EBmoms #EpidermolysisBullosa #ebawareness

Classic Holiday Movies Movie Drinking Games Cinema Ticket Sathya Sai Baba Free Movie Downloads Holiday Games Chick Flicks Admit One Wayfarer

#cureEB #EpidermolysisBullosa #ebawareness

Gold Necklace Chain Jewelry Gold Pendant Necklace Jewlery Jewerly Necklaces Schmuck Jewels

#epidermolysisbullosa #EBawareness #cureeb

Never Underestimate Sleep Deprivation Caffeine Disorders Mom Learning Studying Teaching Mothers

Never underestimate the power of a speel deprived, caffeinated, determined EB mom! #EpidermolysisBullosa #EBawareness

Uber Humor Rare Disease Trending Memes Workplace Funny Jokes Celebrities Owls Face People

When you have a rare disease you face two battles. One being the illness itself and the other, living in a worls where so few people understand what you're up against.