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Epidermolysis Bullosa - My Son's Disorder

Collection by Silvia Corradin • Last updated 1 day ago

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My son was born with a devastating skin disorder called Epidermolysis Bullosa-the Recessive Dystrophic form. Please learn more at http://blog.ebinfoworld.com

Silvia Corradin
Cure Epidermolysis Bullosa #epidermolysisbullosa #cureEB #ebawareness

Cure Epidermolysis Bullosa #epidermolysisbullosa #cureEB #ebawareness

Cure Epidermolysis Bullosa #EpidermolysisBullosa #cureEB #EBawareness

Cure Epidermolysis Bullosa #EpidermolysisBullosa #cureEB #EBawareness

We do hard things. We overcome. We persist. But that does not mean we don't experience the difficult emotions and hardships that come with the life of medical complexity.

We do hard things. We overcome. We persist. But that does not mean we don't experience the difficult emotions and hardships that come with the life of medical complexity.

HIgh Five!!! To all the moms, dads, brothers, sisters, grandmas, grandpas, caregivers, teachers who love someone with EB. You ROCK!!! #epidermolysisbullosa #ebawareness

HIgh Five!!! To all the moms, dads, brothers, sisters, grandmas, grandpas, caregivers, teachers who love someone with EB. You ROCK!!! #epidermolysisbullosa #ebawareness

I am not politician, and I will not pretend to know the ins and outs of privatized Health Insurance, Medicaid, Medicare, or Universal Healthcare. People should hever be put in this kind of situation. You should never be just one diagnosis away from destitution. Forget about the unalienable rights to liberty and the pursuit of happiness. Can we back up to the right to life? Health Insurance, Politicians, Disorders, Health Care, Learning, Happy, Life, Health Insurance Coverage, Studying

I am not politician, and I will not pretend to know the ins and outs of privatized Health Insurance, Medicaid, Medicare, or Universal Healthcare. People should hever be put in this kind of situation. You should never be just one diagnosis away from destitution. Forget about the unalienable rights to liberty and the pursuit of happiness. Can we back up to the right to life?

Waiting for science to find a cure or significant treatment while time takes its toll on my child, is the hardest waiting in the world. ~Silvia Corradin #epidermolysisbullosa #cureEB #healeb #ebresearch My Children, Disorders, The Cure, Science, Learning, My Boys, Studying, Teaching, Onderwijs

Waiting for science to find a cure or significant treatment while time takes its toll on my child, is the hardest waiting in the world. ~Silvia Corradin #epidermolysisbullosa #cureEB #healeb #ebresearch

Faith, Hope, Love are all greater than Epidermolysis Bullosa #EBawareness Faith Hope Love, Greater Than, Love Is All, Disorders, Learning, Studying, Teaching, Onderwijs

Faith, Hope, Love are all greater than Epidermolysis Bullosa #EBawareness

Someone with Epidermolysis Bullosa makes me proud every day. Disorders, Learning, Words, Day, How To Make, Studying, Teaching, Horse, Onderwijs

Someone with Epidermolysis Bullosa makes me proud every day.

I <3 someone with Epidermolysis Bullosa #epidermolysisbullosa #EBawareness Disorders, Sons, Learning, Studying, My Son, Teaching, Boys, Children, Onderwijs

I <3 someone with Epidermolysis Bullosa #epidermolysisbullosa #EBawareness

Be kind to yourself. It's okay to grieve. Remember that you can still have a life. Find a new normal and seek support from others. #EBawareness #EpidermolysisBullosa Be Kind To Yourself, Still Have, Its Okay, Disorders, Learning, Life, Too Nice, Its Ok, Studying

Be kind to yourself. It's okay to grieve. Remember that you can still have a life. Find a new normal and seek support from others. #EBawareness #EpidermolysisBullosa

Never underestimate the power of a speel deprived, caffeinated, determined EB mom! #EpidermolysisBullosa #EBawareness Never Underestimate, Sleep Deprivation, Caffeine, Disorders, Mom, Learning, Studying, Teaching, Mothers

Never underestimate the power of a speel deprived, caffeinated, determined EB mom! #EpidermolysisBullosa #EBawareness

When you have a rare disease you face two battles. One being the illness itself and the other, living in a worls where so few people understand what you're up against. Uber Humor, Rare Disease, Trending Memes, Workplace, Funny Jokes, Celebrities, Owls, Face, People

When you have a rare disease you face two battles. One being the illness itself and the other, living in a worls where so few people understand what you're up against.