Amanda Buck

Amanda Buck

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www.elsinosis.com
Vancouver, Canada / Mother to two children who started blogging when my daughter was diagnosed with a rare disease called cystinosis
Amanda Buck
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A podcast of my interview on The Storytelling Show talking about cystinosis and the book I recently put together and co-edited, Strength: Lives Touched by Cystinosis

A podcast of my interview on The Storytelling Show talking about cystinosis and the book I recently put together and co-edited, Strength: Lives Touched by Cystinosis

Strength: Lives Touched by Cystinosis is now available to purchase! This collection of stories from the cystinosis community benefits the Cystinosis Research Network and shines a light on those effected by the rare disease cystinosis

Strength: Lives Touched by Cystinosis is now available to purchase! This collection of stories from the cystinosis community benefits the Cystinosis Research Network and shines a light on those effected by the rare disease cystinosis

Strength: Lives Touched by Cystinosis is now available to purchase! This collection of stories from the cystinosis community benefits the Cystinosis Research Network and shines a light on those effected by the rare disease cystinosis

Strength: Lives Touched by Cystinosis is now available to purchase! This collection of stories from the cystinosis community benefits the Cystinosis Research Network and shines a light on those effected by the rare disease cystinosis

This hearty paleo cauliflower fried rice is brimming with textures and flavor. A nutritious blend of cauliflower, bell peppers, garlic, onion and smoked sausage is tossed with spices for a downrigh…

This hearty paleo cauliflower fried rice is brimming with textures and flavor. A nutritious blend of cauliflower, bell peppers, garlic, onion and smoked sausage is tossed with spices for a downrigh… paleo dinner shrimp

Check out the upcoming anthology of stories from the cystinosis community "Strength: Lives Touched by Cystinosis". Add to GoodReads today!

Check out the upcoming anthology of stories from the cystinosis community "Strength: Lives Touched by Cystinosis". Add to GoodReads today!

Strength: Lives Touched by Cystinosis Cover Reveal! I'm super excited to reveal the cover of the upcoming anthology I've been working on

Strength: Lives Touched by Cystinosis Cover Reveal! I'm super excited to reveal the cover of the upcoming anthology I've been working on

Do you ever look back on your life and see a defining moment where everything changed? For cystinosis families the answer is obvious and for me this feeling is never more apparent then when I'm looking back on old photographs of our lives before cystinosis

Do you ever look back on your life and see a defining moment where everything changed? For cystinosis families the answer is obvious and for me this feeling is never more apparent then when I'm looking back on old photographs of our lives before cystinosis

Two Gifts You Should Give Your Children via @NotSoFancyLife

Two Gifts You Should Give Your Children via @NotSoFancyLife

Elsie and I attended the Cystinosis Research Foundation's Day of Hope conference and it was amazing! I summarize all the exciting things I learned this trip

Elsie and I attended the Cystinosis Research Foundation's Day of Hope conference and it was amazing! I summarize all the exciting things I learned this trip