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This isn't a picture of me or my son, it's just the picture shown on the site from the Muscular Dystrophy Association. What you will find on this page, is a description of my oldest son's disease. He is my hero, and has taught me so much about grace, courage, and living life to its fullest. I will miss him so much when he's gone. Words fail to honor what his short life will mean to me.

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The newly released American Academy of Neurology guideline for limb-girdle MD and some forms of distal MD emphasizes accurate diagnosis, as well as detection and treatment of cardiac and respiratory abnormalities. by: Margaret Wahl on October 29, 2014 http://quest.mda.org/news/aan-releases-guideline-lgmd-diagnosis-and-care

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from NYTimes.com

Gene Editing Offers Hope for Treating Duchenne Muscular Dystrophy, Studies Find

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from NYTimes.com

Gene Editing Offers Hope for Treating Duchenne Muscular Dystrophy, Studies Find

Jan. 1, 2016 - NewYorkTimes.com - Gene editing offers hope for treating Duchenne muscular dystrophy, studies find

from NYTimes.com

Gene Editing Offers Hope for Treating Duchenne Muscular Dystrophy, Studies Find

Duchenne muscular dystrophy (DMD) is the most common childhood form of muscular dystrophy; it generally affects only boys (with extremely rare exceptions), becoming clinically evident when a child begins walking. By age 10, the child may need braces for walking and by age 12, most patients are unable to walk. Life span ranges from 15 to 45, but there are a few exceptions.

from Muscular Dystrophy News

Duchenne Muscular Dystrophy Might Be Treatable with Cancer Drug

Read about a study finding a drug used to treat leukemia  might be a potential therapy to slow the progression of Duchenne muscular dystrophy.

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