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A boy develops a disease so rare that nobody is working on a cure, so his father decides to learn all about it and tackle the problem himself.

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A129 Lorenzo Lotto The Assumption of the Virgin 1506 Oil on panel 175 x 162 cm Duomo Asolo Asolo, Italy

Lorenzo's Oil (1992)

A boy develops a disease so rare that nobody is working on a cure, so his father decides to learn all about it and tackle the problem himself.

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Diets That Treat Genetic Disease – Three Classic Cases

DNA Science Blog - diets that treat genetic disease - three classic cases, PKU dirty diaper story, Lorenzo's oil (ALD), and Amish Cerebral Palsy (Glutaric Aciduria) (fyi organic acid in blood "emia" organic acid in urine "urea".

Beyond 'Lorenzo’s Oil': What parents should know about testing for ALD

Beyond 'Lorenzo's Oil': What parents should know about testing for ALD

Lorenzo's Oil - Lorenzo's Oil is currently available to patients with ALD aged 18 months to 18 years who meet the criteria (normal MRI, positive VLCFAs - very long chain fatty acids).

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Lorenzo's Oil a movie based on true story of a family whose son who had a rare disease. It is so rare no one will give any money to research a cure. Lorenzo’s father researches himself and comes up with a cure, but it is too late to save Lorenzo. The father was awarded a PhD for his work. He had what was called Adrenoleukodystrophy (ALD), a genetic disease that progressively destroys the brain of young boys.