She Never Let Go: A Guardian Angel Story - Her View From Home
I heard the helicopter before I saw it. The thumping sound vibrated into my bones. Hot afternoon sun blinded me as the paramedics heaved me from the helicopter to the gurney. A cool rush of air pushed us down the corridor when the heavy hospital doors slammed shut behind us. I counted ceiling lights as […]
The Brothers P – Nicole’s Preemie Birth Story
There are so many faces to prematurity. I think everyone’s story deserves to be told so I asked some of my preemie mom friends to share their stories on the blog. What better way to raise awareness…
Tuck, Not Stretch (Physical Therapy for Preemies)
Preemies develop differently than full term babies. And here is a great example… Full term babies spend their time in the womb tucked in a ball-like position. When full-term babies are born, …
5 helpful apps for you and your child with medical complexities
For a child with medical complexities and their caregivers, each day can bring new challenges and details to remember. With the right technology, those details can be stored and those challenges can be addressed. We researched apps for medical needs and found 5 we think our families would find helpful.
ERRP | Expired Registration Recovery Policy
And she is an amazing miracle. We did 20 weeks in NICU, with no ventilator, only a nasal cannula. A brain hemorrhage & 4 eye surgeries later we were left expecting the worst. A child with no vision & major developmental challenges. She now sees well enough to read normal fonts with glasses, and reads a 12th+ reading level in 5th grade. She read 2 million words in a school year, in 2nd grade. She is active in cheer, gymnastics, track, and dance. She never uses her disability for a crutch…
The Sky is the Limit: Breastfeeding a Vent-Dependent NICU baby - Hand to Hold
One NICU mom shares the challenges and successes of pumping milk and learning to make breastfeeding possible for her ventilator-dependent preemie.