Please contact me with any questions you have . I've had this disease since 2007 and I am On disability. It really helps to be around people who can empathize with you. I am a support group leader in my state. There is a leader in each state and country all over the world. Go onto the Interstitial Cystitis Association web site and they have contact information for every leader all over the world. Contact me with any questions.
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