Global Genes

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578 following
www.globalgenes.org
Global Genes- a leading patient advocacy organization working to eliminate the challenges of rare disease faced by 350 million people worldwide. #CareAboutRARE
Global Genes
Featured boards
RARE Community News
155 Pins
RARE Community News
RARE Patient Stories
68 Pins
RARE Patient Stories / Stories submitted by patients impacted by rare disease
RARE Facts & Resources
37 Pins
RARE Facts & Resources
Rarehouse- Products that Inspire
30 Pins
Rarehouse- Products that Inspire
Words that inspire!
198 Pins
Words that inspire!
RARE Patient Advocacy Summit
7 Pins
RARE Patient Advocacy Summit / Global Genes hosts The RARE Patient Advocacy Summit every year in Huntington Beach, California! The goal of the RARE Patient Advocacy Summit is for patients, caregivers, and advocates to walk away equipped with actionable next steps whether you have been recently diagnosed, are building a disease community, thinking about funding early research, actively engaged in developing a treatment, or have been advocating in rare disease for decades. globalgenes.org
RARE Tribute to Champions of Hope
5 Pins
RARE Tribute to Champions of Hope / Each year, Global Genes hosts its annual RARE Tribute to Champions of Hope, where we have the good fortune of hearing from rare disease champions from around the globe who are proving that great things can be accomplished by dreaming, planning, taking action, and believing. The results are quite inspiring. globalgenes.org
Products We Love
66 Pins
Products We Love
Genetics
14 Pins
Genetics
World RARE Disease Day
12 Pins
World RARE Disease Day / World Rare Disease Day is an annual observance held on the last day of February (February 28th or February 29th in a Leap Year) to raise awareness for rare diseases and improve access to treatments and medical representation for individuals with rare diseases and their families.
Creative Ideas
46 Pins
Creative Ideas
Alliance For Cryoglobulinemia
15 Pins
Alliance For Cryoglobulinemia