Evidence that CFS truly does deserve all three elements of its name has accumulated over the years but a definitive diagnostic test has remained elusive. Until, perhaps, now. For in this week’s Proceedings of the National Academy of Sciences Robert Naviaux of the University of California, San Diego, and his colleagues published evidence that the metabolisms of those diagnosed with CFS are all changing in the same way.
What Is ME/CFS? Myalgic encephalomyelitis (ME)/Chronic Fatigue Syndrome (CFS), also known chronic fatigue and immune dysfunction syndrome (CFIDS), is a complex and debilitating chronic disease with a serious impact on one’s quality of life.
Phoenix Rising provides people with myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) information to support their health and well-being.
The Solve ME/CFS Initiative (SMCI) has been the leading organization focused on myalgic encephalomyelitis (ME) and Chronic Fatigue Syndrome (CFS) since being founded in 1987. SMCI envisions a world free of ME/CFS and works steadfastly to make this disease understood, diagnosable and treatable. SMCI seeks to actively engage the entire ME/CFS community in research, works to accelerate the discovery of safe and effective treatments, and strives for an aggressive expansion of funding towards a…
Mady Hornig, MD, Associate Professor of Epidemiology and Director of Translational Research at the Center for Infection and Immunity discusses the impact that the latest findings may have on ME/CFS diagnosis and treatment
The Solve ME/CFS Initiative is currently doing the preliminary work of collecting full medical histories and defining the diagnostic criteria that will be most useful for researchers going forward. As a result, we may be contacting some BioBank participants to collect more information and verify their diagnosis. These measures will ensure that we are able to conduct reliable and reproducible research that can make a lasting difference for our patients and their families.