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Ehlers-Danlos Syndrome Awareness

“Start by doing what is necessary, then what is possible, and suddenly you are doing the impossible.”― St. Francis.

Ehlers-Danlos Syndrome Awareness

  • 165 Pins

17 Things You'll Understand If You or Someone You ❤️ Has A Rare Disease. #EDS #chronicillness #chronicallyfabulous #raredisease #SeeThisCC

17 Things You'll Only Understand If You Have A Rare Disease

Heated Wristies and they have longer options / colors as well!

Heated Wristies

Rare Disease Day Feb 28 ® 2015 - The Official Rare Disease Day 2015 Video is Out! Be a part of the Rare Disease Day momentum – share the Rare Disease Day 2015 video and show the world how to live in solidarity day-by-day, hand-in-hand.

EDS International Symposium 2016 | The Ehlers-Danlos National Foundation primary goal is to reclassify the diagnostic criteria for all the types of Ehlers-Danlos syndrome & reach universal guide for management.

EDS International Symposium 2016 | The Ehlers-Danlos National Foundation

Raising awareness with less known disorders. #EhlersDanlosSyndrome Awareness #EDS

EDNF 2014 Conference Francomano

EDNF 2014 Conference Pocinki

Handy for a Zebra & others: LEVO Deluxe iPad Floor Stand for all iPads Galaxy Xoom Nook and Other eBooks and Tablets (versatile stand to keep your tool at eye level & it is on wheels) I use this reading in a chair or in bed. I love it so much I've named mine.

Greater Metropolitan Washington Area - October 17, 2012 - Diagnosis of Craniocertebral Instability in the Chiari/EDS Population Dr. Henderson. (Measurements explained)

"But strap knives to your legs first because if you get there and find that it's not actually your ship you're gonna need to pirate that shit out.".....Right?! *smirk*

When you hear hoofbeats, sometimes it's a zebra. #RareDisease #GlobalGenes #Infographic

Rare Disease Infographic

The difference between Living with a chronic illness and being alive with a chronic illness. Good Points to remember as we cope. #ChronicIllness #EDS #EhlersDanlosSyndrome Awareness

  • Nicole Kriedeman
    Nicole Kriedeman


Limitation &'s all about flexibility! *grin* #EhlersDanlosSyndrome Awareness #EDS

#EhlersDanlosSyndrome Awareness #EDS

The EDS community if full of Zebras there for Others! #EDS Blessings during Awareness Month & everyday! Giving my appreciation & Thanks! Keep paying it forward! ❤️

#EhlersDanlosSyndrome Awareness #EDS

Subluxation is real... Connective tissue disorders. #EhlersDanlosSyndrome Awareness #EDS. To learn more about Chung-Ha Suh, PhD Jump to source. And more here:

Magnesium Treatment & Absorption | Nutritional Magnesium Association note two Neurotoxic forms they recommend you Avoid. Magnesium citrate, taurate & malate are GOOD forms of magnesium. Magnesium aspartate & glutamate = Neurotoxic

#EhlersDanlosSyndrome Awareness #EDS #chronicpain #chronicillness

Umm.... yeah. #EhlersDanlosSyndrome Awareness #EDS

And another one... #EhlersDanlosSyndrome Awareness is like waking up in a bed that you fought with all night. I always described myself as identifying with The Princess and The Pea long before knowing what #EDS was. Beautiful work by#skottieyoung Princess and the Pea by skottieyoung

Princess and the Pea by skottieyoung on deviantART
  • Mina Fae
    Mina Fae


...description of EDS for me...

Beginner - Isometric Belly Tuck. strengthening core for hypermobile people

Dr. Mackarey's Health & Exercise Forum. Shoulder instability exercises

Kim Goodsell teamed up with DDSTUDIO. The result is a pedestrian assistive technology called ROVA, a sleek, sturdy & customizable device that possesses the same performance quality, strength and aesthetics as Goodsell’s top-line road bike. Goodsell introduced a prototype of ROVA Thursday morning at the Scripps Health Future of Genomic Medicine Conference in La Jolla, during a presentation w/ Dr. Eric Topol, a genomic medicine expert and proponent of the empowered patient. #ROVA #KimGoodsell