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Ehlers-Danlos Syndrome Awareness

“Start by doing what is necessary, then what is possible, and suddenly you are doing the impossible.”― St. Francis.

Ehlers-Danlos Syndrome Awareness

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If You Can't Connect the Issues, Think Connective Tissues (Heidi Collins, MD) #EhlersDanlosSyndrome Awareness #EDS

Dr. Heidi Collins "Autonomic Dysfunction: More Common than Expected — Guidelines for Diagnosis and Management",

Autonomic Dysfunction HAC FINAL.pptx

#ChronicIllness #ChronicallyFabulous Keep going one step in front of the other you are not alone!

Trigger Point Complex - Myofascial Trigger Points

Myofascial Trigger Points

Sternocleidomastoid muscle - sternal branch. The SCM can cause a variety of symptoms and is the only muscle that creates such wide spread problems. Cervical instability can cause this muscle to overdevelop creating complex problems to unravel. #EhlersDanlosSyndrome Awareness #EDS

Sternocleidomastoid Muscle

Chronic Illness Ehlers Danlos Syndrome Physical Therapy Chronically Fabulous One step at a time rebuilding a better version of self! #EhlersDanlosSyndrome Awareness #EDS

Sternocleidomastoid Pain When the SCM is strained or shortened the muscle itself rarely hurts, no matter how stiff or tight it may be. Problems are referred elsewhere, to head and neck, ears, eyes, nose and throat.... Sternal Division (left): Head pain, "sinus" pain, visual disturbances, “sore throat,” difficulty swallowing, dry cough. Clavicular Division (right): Autonomic and proprioceptive disturbances; frontal "sinus" headache...


We think the EDS community already knows this one..."growing pains" means there is something wrong and it needs to be check into further.

Mast Cell Activation Disorders On the Rise

Mast Cell Activation Disorders On the Rise

EDS is a not so rare but rather a difficult to diagnose multisystem connective tissue disorder that is often misdiagnosed, misunderstood and certainly under-serviced.

Issues with my Tissues - amazing documentary on Community TV channel following Lara Bloom who has EDS Hypermobility type as she trained for and walked the London marathon. #EhlersDanlosSyndrome #EDS

Issues with my Tissues

Exercises to strengthen hypermobile shoulders

Shifty Shoulders

Craniocervical Instability #CCI #EhlersDanlosSyndrome Awareness Know when you need dynamic testing with upright MRI and rotational CT. It can make a difference.

What is Craniocervical Instability?

beating limitations .... The Five-how to keep a positive attitude in the face of life changing complications from chronic conditions.

The Five - Beating Limitations

17 Things You'll Understand If You or Someone You ❤️ Has A Rare Disease. #EDS #chronicillness #chronicallyfabulous #raredisease #SeeThisCC

17 Things You'll Only Understand If You Have A Rare Disease

Heated Wristies and they have longer options / colors as well!

Heated Wristies

Rare Disease Day Feb 28 ® 2015 - The Official Rare Disease Day 2015 Video is Out! Be a part of the Rare Disease Day momentum – share the Rare Disease Day 2015 video and show the world how to live in solidarity day-by-day, hand-in-hand.

EDS International Symposium 2016 | The Ehlers-Danlos National Foundation primary goal is to reclassify the diagnostic criteria for all the types of Ehlers-Danlos syndrome & reach universal guide for management.

EDS International Symposium 2016 | The Ehlers-Danlos National Foundation

Raising awareness with less known disorders. #EhlersDanlosSyndrome Awareness #EDS

EDNF 2014 Conference Francomano

EDNF 2014 Conference Pocinki

Handy for a Zebra & others: LEVO Deluxe iPad Floor Stand for all iPads Galaxy Xoom Nook and Other eBooks and Tablets (versatile stand to keep your tool at eye level & it is on wheels) I use this reading in a chair or in bed. I love it so much I've named mine.

Greater Metropolitan Washington Area - October 17, 2012 - Diagnosis of Craniocertebral Instability in the Chiari/EDS Population Dr. Henderson. (Measurements explained)

"But strap knives to your legs first because if you get there and find that it's not actually your ship you're gonna need to pirate that shit out.".....Right?! *smirk*

When you hear hoofbeats, sometimes it's a zebra. #RareDisease #GlobalGenes #Infographic

Rare Disease Infographic