Ehlers-Danlos Syndrome Awareness

“Start by doing what is necessary, then what is possible, and suddenly you are doing the impossible.”― St. Francis.


Ehlers-Danlos Syndrome Awareness

  • 192 Pins

Autonomic Testing & the importance of ruling out Comorbidities. Dr Kamal Chémail April 2015

Autonomic Testing & The Importance of Ruling Out Co Morbidities

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Highly recommend: Living Life to the Fullest with Ehlers-Danlos Syndrome: Guide to Living a Better Quality of Life While Having EDS. Intended for EDS'er and Physical therapist. Written by, Physical Therapist Kevin Muldowney, MsPT. #EhlersDanlosSyndrome Awareness #EDS

Living Life to the Fullest with Ehlers-Danlos Syndrome: Guide to Living a Better Quality of Life While Having EDS: PT Kevin Muldowney: 9781478758884: Amazon.com: Books

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Conversations about chronic illness can be uncomfortable. Here are some helpful suggestions. #ChronicIllness #ChronicallyFabulous. #EhlersDanlosSyndrome Awareness #EDS

6 Phrases People Facing Serious Illnesses Would Rather Hear You Say

themighty.com

Living with Ehlers-Danlos, an invisible disease.

Why I stare down people on trains

medium.com

Inherited genetic disorders #EhlersDanlosSyndrome Awareness #EDS

Community Post: 31 Random Facts About Ehlers-Danlos Syndrome

buzzfeed.com

Kristin Means - Life With EDS - YouTube #EhlersDanlosSyndrome Awareness #EDS

Kristin Means - Life With EDS

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Hypermobility vs. Flexibility: Do You Know the Difference? — Jenni Rawlings Yoga & Movement

Hypermobility vs. Flexibility: Do You Know the Difference?

jennirawlings.com

I Was Just A Typical Teen Who Loved To Dance Until I Discovered The Rare Disorder Responsible For My Crazy Flexibility Was Also Destroying My Body - Seventeen.com #EhlersDanlosSyndrome Awareness #EDS

I Was Just A Typical Teen Who Loved To Dance Until I Discovered The Rare Disorder Responsible For My Crazy Flexibility Was Also Destroying My Body

seventeen.com

Approximately 96% of people who live with an illness have an invisible illness. #EhlersDanlosSyndrome Awareness #EDS #ChronicIllness

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What happens in your brain when you feel pain? from TED-Ed Almost put this on my TED Talks board, but I'll leave it here instead.

How does your brain respond to pain? - Karen D. Davis

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Collaborative solutions with a multidisciplinary approach will make a difference in how we solve these health issues.

Tal Golesworthy: How I repaired my own heart

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Best Compression Stockings for Hot Weather #EDS #EhlersDanlosSyndrome Awareness #Dysautonomia #OrthostaticIntolerance

Best Compression Stockings for Hot Weather

rejuvahealth.com

Diet & Supplement Guidelines for EDS (Heidi A. Collins) Dietary and nutritional supplement general guidelines for persons with Ehlers-Danlos syndrome, by Dr. Heidi A. Collins.

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If You Can't Connect the Issues, Think Connective Tissues (Heidi Collins, MD) #EhlersDanlosSyndrome Awareness #EDS

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Dr. Heidi Collins "Autonomic Dysfunction: More Common than Expected — Guidelines for Diagnosis and Management",

Autonomic Dysfunction HAC FINAL.pptx

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#ChronicIllness #ChronicallyFabulous Keep going one step in front of the other you are not alone!

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  • Elle Forsberg
    Elle Forsberg

    We are all stronger than we think!

Trigger Point Complex - Myofascial Trigger Points

Myofascial Trigger Points

natural-solutions-for-muscle-pain.com

Sternocleidomastoid muscle - sternal branch. The SCM can cause a variety of symptoms and is the only muscle that creates such wide spread problems. Cervical instability can cause this muscle to overdevelop creating complex problems to unravel. #EhlersDanlosSyndrome Awareness #EDS

Sternocleidomastoid Muscle

natural-solutions-for-muscle-pain.com

Chronic Illness Ehlers Danlos Syndrome Physical Therapy Chronically Fabulous One step at a time rebuilding a better version of self! #EhlersDanlosSyndrome Awareness #EDS

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Sternocleidomastoid Pain When the SCM is strained or shortened the muscle itself rarely hurts, no matter how stiff or tight it may be. Problems are referred elsewhere, to head and neck, ears, eyes, nose and throat.... Sternal Division (left): Head pain, "sinus" pain, visual disturbances, “sore throat,” difficulty swallowing, dry cough. Clavicular Division (right): Autonomic and proprioceptive disturbances; frontal "sinus" headache...

ROUND EARTH PUBLISHING

round-earth.com

We think the EDS community already knows this one..."growing pains" means there is something wrong and it needs to be check into further.

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Mast Cell Activation Disorders On the Rise

Mast Cell Activation Disorders On the Rise

medpagetoday.com

EDS is a not so rare but rather a difficult to diagnose multisystem connective tissue disorder that is often misdiagnosed, misunderstood and certainly under-serviced.

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caneds.org

Issues with my Tissues - amazing documentary on Community TV channel following Lara Bloom who has EDS Hypermobility type as she trained for and walked the London marathon. #EhlersDanlosSyndrome #EDS

Issues with my Tissues

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Exercises to strengthen hypermobile shoulders

Shifty Shoulders

experiencelife.com