The Jordan Howell Project: Living with Friedreich's Ataxia

Film maker Jordan Howell's aim is to spread awareness about FA and to raise funds for research - finding a cure.
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Welcome to BabelFAmily, the international project to defeat Friedreich's Ataxia

Welcome to BabelFAmily, the international project to defeat Friedreich's Ataxia

Somewhere on the Site of Serendip Studio you'll find a most comprehensive article on #FA. Just click on the image, it'll take you to Serendip Studio. Look for the Search bar on the right hand side and type: Friedreich's Ataxia.

Serendip Studio is a digital ecosystem for exploring, a collaborative learning community, for fun and questioning fellow travelers.

Friedreich’s ataxia doesn’t affect parts of the brain involved in mental functions.

Friedreich's ataxia has no cure, but researchers are working on answers

Friedreich’s ataxia doesn’t affect parts of the brain involved in mental functions.

Affordable housing for adults living with FA, a place where they can get the care they need, and be as independent as they can. It's a dream we hope will come true with Promise in Brevard.

Promise is a much needed housing choice where people with diverse abilities can have a fun-filled life, with opportunities and freedom never thought possible.

The Jordan Howell Project: In the Can - The Making of "Everything is Peachy" Documentary on Living with Friedreich's Ataxia

In the fall semester of I took an editing class. Midway through the semester, th.

Discovery of Nephew on Facebook and GiveForward

Discovery of Nephew on Facebook and GiveForward

On the Splore White Water Rafting Trip for people with FA we saw the Wijit wheelchair in action IRL for the first time. If Wijit is an improvement on the regular manual wheelchair, allowing users to go up hill faster, the wheelchair in the video has one up on the original. The Rice students added parts that make the Wijit work for a boy with arthrogryposis.

Rice University students build custom chair for teen with arthrogryposis

Michelle Moffitt Smith about the fact, plus living, studying, working with FA.

Michelle Moffitt Smith about the fact, plus living, studying, working with FA.

FARA - Friedreich's Ataxia Research Alliance

FARA - Friedreich's Ataxia Research Alliance

A place to live as independent as one can, with help near by, and friends around. Here ar the Concept Floor Plans.

Promise in Brevard Official Site

The Jordan Howell Project: Grocery Shopping List for person with #FA living by himself without meals on wheels or caregiver who cooks.

The Jordan Howell Project: Grocery Shopping List for person with living by himself without meals on wheels or caregiver who cooks.

On the Dutch site about hereditary and rare diseases you'll find Friedreich-ataxia (FA). Click on the "video's" tab in the vertical, left hand menu bar to find the documentary about Jordan "Everything is Peachy". | erfelijkheid.nl

On the Dutch site about hereditary and rare diseases you'll find Friedreich-ataxia (FA). Click on the "video's" tab in the vertical, left hand menu bar to find the documentary about Jordan "Everything is Peachy". | erfelijkheid.nl

It's going to happen! Thanks to fundraising and generous donations Jordan is going to have his Ki Mobility - Rogue   his new manual wheelchair is going to be a fact pretty soon. Just one more week of fundraising left.  QUESS WHICH COLOR HE CHOSE?

It's going to happen! Thanks to fundraising and generous donations Jordan is going to have his Ki Mobility - Rogue his new manual wheelchair is going to be a fact pretty soon. Just one more week of fundraising left. QUESS WHICH COLOR HE CHOSE?

In the short time that I've known Jordan, I've learned how powerful his mind is; how he practices his own kind of meditation. How? Exercising, listening to music, musing.  Often, when reading his answers to my questions I think he must have earned the badge "the reward of patience is patience" many times over.  Not that he doesn't get upset, or loses it at times, but he collects himself and moves on.  As Kyle Bryant say: "Minimize the loss. Focus on moving forward."

In the short time that I've known Jordan, I've learned how powerful his mind is; how he practices his own kind of meditation. How? Exercising, listening to music, musing. Often, when reading his answers to my questions I think he must have earned the badge "the reward of patience is patience" many times over. Not that he doesn't get upset, or loses it at times, but he collects himself and moves on. As Kyle Bryant say: "Minimize the loss. Focus on moving forward."

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