The doctor who acted like my sister was an idiot for telling him she had lipedema even after she told him what it was & that it has been diagnosed by another doctor. A receptionist had to print off WebMD articles to prove to him it's a REAL condition.
I think that this is one of the best depictions of what someone with IIH better known as pseudotumor cerebri goes through! I pray each day that some major break through will be found in this life crippling disease! No one deserves to have to give up on there dreams because of this!
I know you see me posting on Facebook or Twitter and wondering why I am not answering your email since I must feel better. I'm sorry, My brain can only handle certain things right now and I am hurting badly and just trying to distract myself from the pain. I will write you soon I promise.