2013 Congenital Heart Walk - Central Virginia

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congenitalheartwalk.kintera.org

Landon was diagnosed with Pulmonary Artresia & Intact Ventricular Septum. Because of this his right ventricle never fully developed. Landon came into the world on April 3rd 2012 weighing 5Ibs 13oz He was immediately taken to the NICU. During his first two weeks of life, he went thru a heart cath and two open heart surgeries. Today Landon is 2 months old and you would never know from looking at him that there is anything wrong.

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landonsletters.blogspot.com

Amanda Rose Adam's Blog about being a CHD mumma, will make you cry, laught and get motivate to make changes

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amandaroseadams.com

5 questions to ask at your 20 week ultrasound to help detect a congenital heart defect. <3 #CHD

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corashopesanddreams.org

The CHD Show with Jim Ferretti | Conversations with people affected by Congenital Heart Disease.

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itunes.apple.com

CHD Awareness and Newborn CCHD Pulse Ox Screening Awareness

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richmondmom.com

http://richmondmom.com/2011/02/04/my-child-is-1-in-100/

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richmondmom.com

Madison was born on May 2nd, 2011. She is now 9 months old! Madison was born with several severe CHDs. Madison was essentially born with half of a heart. Her diagnosis is double inlet single ventricle (our pre-natal diagnosis was HLHS, but they cannot tell if she has the right or left side of her heart), dextrocardia, pulmonary atresia, stenosis of the LPA. In Madison's short life, she has had 2 heart surgeries and 2 heart caths. She has been intubated over 5 times, spent months in the...

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Lisa Robertson McGhan

Milo is truely a miracle child! He was diagnosed with an aortic coarctation before birth and after birth many more defects were found although most of them were unrelated to his heart. At a week old he underwent a 6 hour surgery to repair his coarc and his trachea. Milo's future was still very uncertain but he fought and went on to thrive despite a tracheostomy and being ventilator dependant for 2 years. Last fall Milo had a stint placed in his right pulmonary artery through a cardiac ca...

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milostones.blogspot.com

Charlie was born on July 30, 2004. We thought we had a perfectly healthy baby, so we were shocked and devastated when Charlie was transferred to the NICU when he was 18 hours old. The next few days were a terrible blur as he was taken to Children's Hospital and we learned that our baby had a complex congenital heart defect called Hypoplastic Left Heart Syndrome (HLHS). Charlie has undergone 3 open heart surgeries and 3 heart catheterizations. His phenomenal team of doctors is led by Dr. Mark...

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carepages.com

Caelyn Mckenzie, born 2/11/11 with Tetralogy of Fallot. Had complete repair at 5 1/2 months old. She is now a spunky, loving soon-to-be 1 year old whom you'd never know anything was wrong with her little heart. She will need a pulmonary valve replacement in the future. She is my 1 in 100.

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Lisa Robertson McGhan

Kael Keoni Adams was born Feb. 18, 2004. He was born with a rare and complex Congential Heart Defect, Taussig-Bing Anamonly. Taussig-Bing is a type of Double Outlet Right Ventricle,(DORV), that is always accompanied with Transposition of the Great Arteries,(TA), Subpulmonic Ventricular Septal Defect,(VSD),and Coarctation of the Aorta. Unfortunately, Kael is not a text-book case, he also now has Pulmonary Stenosis,(PS) and Pulmonary Hypertension. This came as a result from his first open hea...

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Lisa Robertson McGhan

Ashton is 14 years old. He was born September 21st, 1997. He was diagnosed with hypo-plastic left heart, dextrocardia, no pulmonary artery, ASD, VSD and the paton ductus was wrapped around the artery going to his left lung. Originally they told us he wouldn't be born alive. There has not been a year go by that Ashton hasn't had some sort of procedure done since he was born. Whether it be as major as surgery, or as simple as ultrasounds. He is a very strong kid and a great blessing to o...

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imissmayberry.blogspot.com

Our Miracle: Our HEART journey started with this sweet baby girl born with a BROKEN HEART.... and today that sweet baby girl is a fun, vivacious, 6 1/2 year old who unless you catch a glimpse of her "Special Heart Zipper" you would never guess that she had to fight for LIFE! She won that fight! Brynley's open heart surgery in May 2006 repaired two large Atrial Spetal Defects (ASD) and repaired a cleft in her mitral valve. It was a miracle that they found the defects in her tiny little he...

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Lisa Robertson McGhan

We found out at our 20 week ultrasound that our baby had a special heart. 3 days later we had our first fetal echo and found out some of the defects he had. When Greyson was born on 10/7/10 we found out that he has Double Outlet Right Ventricle, Transpostion of the Great Vessels, Pulmonary Stenosis, Sub-Pulmonic Blockage, and his valves attached through his VSD rather than straight down. He had an atrial balloon septostomy during his 2 week NICU stay and had his Glenn done on 2/22/11, go...

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greysonknigge.blogspot.com

Our first child, Luke Charles Valentino, was born January 19, 2010. We had an uncomplicated pregnancy and expected a perfectly healthy child, but when Luke was born, he was cyanotic (blue) and had a weak cry. The neonatal team knew something was wrong and immediately took our baby to the NICU. Two hours later, we were told Luke had Transposition of the Great Arteries (TGA) and required surgery. We were completed devastated. They transported him to Rady Children's Hospital here in San Di...

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Lisa Robertson McGhan

Bryan is our 5 year old son that had an ASD and a VSD repaired through open heart surgery. Bryan is our third child born to our family, I had 2 miscarriages one before and one after Bryan as well. I had a normal pregnancy, but after Bryan was born, and in the weeks following, we noticed things that seemed different from our older 2 kids. At 2 months old Bryan saw the cardiologist and was put on 2 different meds to help his heart. At 6 months old the cardiologist told us that Bryan would...

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Lisa Robertson McGhan

Our Angel Aaron was born April 19, 2011 and lived to the tender age of 2 1/2 months when he left us to return to his heavenly home on July 7, 2011. He was diagnosed in utero with Hypoplastic Left Heart Syndrome. When he was born he was stabilized and then transferred to the local Children's Hospital where they decided he really had Hypoplastic Right Heart/Tricuspid Atresia/Transposition of the Great Arteries (TGA). He had his first open heart surgery at 1 week old. He did great in his recove...

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atriptoholland.net

Our Daughter Aine has Tetrology of Fallot. She is doing very well for as sick as she was at birth. 9 months of fights and struggles and now she is smiling, starting to laugh, working on sitting up and starting to enjoy life!

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shawnandnicole.blogspot.com

Some of my FREE CHD graphics for kids with heart defects - go to my son's blog for download: http://www.ironwillgooch.blogspot.com/

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Lisa Robertson McGhan

CHD Awareness Week Feb 7-14th 2012

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cafepress.com

Puzzle piece pin

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familyfun.go.com

This is my autobiography about growing up with heart disease. I wrote it for young adults who are growing up with heart disease or other chronic illnesses, as well as parents of young children growing up with heart disease. It's meant to help them see that I survived growing up with a congenital heart defect, and to give them hope for the future. I hope you will find my book helpful in your times of need. Reach for the stars, and make your dreams come true. I was born with Tetrology of Fa...

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amazon.com

Matthew was born with an undiagnosed congenital heart defect. Because blood oxygen testing is not mandatory for newborns I almost took him home. I will forever be grateful to a very observant nurse who thought his color was different when she saw him 24 hours after he was born. He had transposition of the great arteries and an ASD (hole). He had a septostomy at 3 days old and open heart surgery at 10 days old. Read more in my blog about our journey.

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thebumpsintheroad.blogspot.com

He has had two open-heart surgeries. One diaphragm surgery. Two cardiac catheterizations. Countless echocardiograms, EKGs, blood draws and chest x-rays. He sported a feeding tube through his nose into his tummy for four months to help him gain weight. He has spent 75 days in the hospital. And he’s only five. He is not only our heart hero, he is our hero and his name is Luke. Luke was born with only one ventricle, which without intervention, would have failed very early in his lif...

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smithfamilyjourney.blogspot.com