CHD stories - Heart to Heart linky

Heart to heart is my monthly linky on my blog for heart families to share their stories. Hearing the stories of other families has helped us immensely on our journey as a heart family and I hope that sharing more stories will help other families too.
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Jessica bundled up in coat, hat and gloves in the snow

The truth about winter and my heart child

The truth about winter and my heart child - Little Hearts, Big Love

Me with Jessica and Sophie. "The mummy I might have been - how did being a heart parent change me?"

The mummy I might have been: how did being a heart parent change me

The mummy I might have been: how did being a heart parent change me? - Little Hearts, Big Love

Six years ago a 20 week scan changed our lives completely. Looking back and reflecting on six years of being a heart family.

Six years on: our journey as a heart family

Six years ago a 20 week scan changed our lives completely. Looking back and reflecting on six years of being a heart family.

Hands making a heart shape - Heart Month 2017: Jessica's Journey - our CHD story

Heart Month 2017: Jessica's Journey - our CHD story

Hands making a heart shape - Heart Month Jessica's Journey - our CHD story

Jessica in the womb at 20 weeks: In pursuit of a miracle: how in-utero surgery gave my daughter a chance to live

In pursuit of a miracle: how in-utero surgery gave my child a chance to live

At 22 weeks' pregnant we were told that our daughter's heart condition was so severe that she would not survive. Then, a glimmer of hope: in-utero surgery

Jessica during her recovery from her Glenn procedure (top) and a Tiny Tickers Heart Week 2017 collection box: Heart Week 2017 - Help Tiny Tickers improve outcomes for babies born with heart defects

Heart Week 2017 – help Tiny Tickers improve outcomes for babies born with heart defects

Jessica during her recovery from her Glenn procedure (top) and a Tiny Tickers Heart Week 2017 collection box: Heart Week 2017 - Help Tiny Tickers improve outcomes for babies born with heart defects

To help us celebrate Mother’s Day mum Louise, whose daughter Jessica has a rare heart condition, kindly shares her thoughts on the wonder and worry of her very special ‘mummy journey’.

Mother’s Day: treasuring the moments

To help us celebrate Mother’s Day mum Louise, whose daughter Jessica has a rare heart condition, kindly shares her thoughts on the wonder and worry of her very special ‘mummy journey’.

Our little lad needs more open heart surgery next year.  We have always known this to be the case.  He has Hypoplastic Left Heart Syndrome, the left side of his heart doesn’t work.  The surgi…

Waiting for the Fontan

Our little lad needs more open heart surgery next year. We have always known this to be the case. He has Hypoplastic Left Heart Syndrome, the left side of his heart doesn’t work. The surgi…

"All those worries, all those fears that seem manageable in the day now become huge and overwhelming. Mummy guilt gains power. It taunts me, tells me that I’m not good enough. Reminding me of the harsh words I couldn’t hold back at the moment when I reached the end of my tether and snapped. Reminding me of the journey that lies ahead and the moments that I should be cherishing." #parenting #chd

The loneliness of 3AM

Reflections of a heart mummy: the loneliness of - when mummy guilt torments me, my fears overwhelm me and sleep becomes elusive.

Two TOFs: Raising Awareness of CHD

This could end up coming across as a little ranty, which isn’t my intention at all and I apologise in advance if that’s where I end up.

What CHD means to me - Two TOFs

What CHD means to me - Two TOFs

Jessica holding her 3rd place sign for the obstacle race - "A special Sports Day achievement"

A special Sports Day achievement

Jessica holding her 3rd place sign for the obstacle race - "A special Sports Day achievement"

Jessica with her 3rd place sign for the obstace race

Jessica with her 3rd place sign for the obstace race

Donna shares her story of being part of the first generation of children born with a single ventricle to survive to adulthood.

My blog for Little Heart Matters

Donna shares her story of being part of the first generation of children born with a single ventricle to survive to adulthood.

Louise George, 37 from Bucks, explains how Action Medical Research helped her daughter, Jessica, who has hypoplastic left heart syndrome

Louise George, 37 from Bucks, explains how Action Medical Research helped her daughter, Jessica, who has hypoplastic left heart syndrome

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