Oregon Chapter Scleroderma Foundation

Collection by Oregon Chapter, Scleroderma Foundation

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News and views from the Oregon Chapter of the Scleroderma Foundation.

Oregon Chapter, Scleroderma Foundation
Keynote speaker for the 14th Annual Cheri Woo Scleroderma Education Seminar is Dr. Francesco Boin on Saturday, March 14, 2015 at University of Portland's Mago Hunt Recital Hall, 5000 N. Willamette Blvd. 97203.  Dr. Boin is the new Director of the Scleroderma Center at the University of California San Francisco, an Associate Professor of Medicine and Dermatology, a physician-scientist with long time experience in scleroderma and its complications. Activity Monitor, Johns Hopkins, Associate Professor, Keynote Speakers, Inspiring People, Recital, Caregiver, Biology, Goal

Keynote speaker for the 14th Annual Cheri Woo Scleroderma Education Seminar is Dr. Francesco Boin on Saturday, March 14, 2015 at University of Portland's Mago Hunt Recital Hall, 5000 N. Willamette Blvd. 97203. Dr. Boin is the new Director of the Scleroderma Center at the University of California San Francisco, an Associate Professor of Medicine and Dermatology, a physician-scientist with long time experience in scleroderma and its complications.

Lilliane's Story, a video that accompanied her article in The Columbian. Rare Disease, Oregon, Foundation, Long Hair Styles, Beauty, Long Hairstyle, Long Haircuts, Foundation Series, Long Hair Cuts

Lilliane's Story

Lilliane Grahek, 12, was diagnosed with scleroderma, a rare disease that involves the hardening and tightening of the skin and connective tissues, when she w...

Vancouver Lilliane Grahek battling scleroderma is featured in The Columbian. 12 Year Old, Vancouver, Oregon, Battle, Foundation, Health Fitness, Foundation Series, Fitness, Health And Fitness

Vancouver 12-year-old battling scleroderma

Lilliane Grahek, lower left, was just 2 years old when the first blotch appeared.

Dream Team Brainstorming Meeting! Legacy Good Samaritan Medical Center,   Wistar Morris Room, First Floor (the same room as support group meetings.) 1015 NW 22nd Avenue, Portland, OR. 97210 October 18th, 2014, 10am-12pm  Have you ever had an idea about something our chapter could be doing (or doing better) but you didn't know who contact, or forgot about it, or just kept it to yourself?  We want to hear what you think might help us to grow and improve. But You Didnt, Keep It To Yourself, Medical Center, Have You Ever, Dream Team, Portland, Oregon, 18th, Foundation

Media Tweets by Scleroderma Oregon (@ORSclero)

The latest media Tweets from Scleroderma Oregon (@ORSclero). The Oregon Chapter of the Scleroderma Foundation is based in Portland, Oregon. We provide scleroderma patients with support groups, events, and other resources!. Oregon, USA

Winner of the 2014 Southwest Airlines raffle grand prize is Pam Camacho from Hillsboro, who is also a scleroderma patient! She is "very happy to win" the two tickets good for any SW Airlines location in the Continental US. Pam commented, "Thanks for the raffle prize. I was shocked to have my name pulled." I Am Shocked, Raffle Prizes, Southwest Airlines, Autoimmune, Oregon, Two By Two, Foundation, Thankful, Happy

Winner of the 2014 Southwest Airlines raffle grand prize is Pam Camacho from Hillsboro, who is also a scleroderma patient! She is "very happy to win" the two tickets good for any SW Airlines location in the Continental US. Pam commented, "Thanks for the raffle prize. I was shocked to have my name pulled."

Elegant Tea Time Fundraiser, September at Myrtles Tea House and Herbery in Ridgefield, WA. Myrtle, Fundraising, Tea Time, Oregon, Foundation, September, Elegant, House, Classy

Elegant Tea Time Fundraiser, September 27, 2014, at Myrtles Tea House and Herbery in Ridgefield, WA.

Oregon Chapter's first ever "Cars for A Cure" show and fundraiser! We had lots of cars, and lots of visitors, August 2014 in Vancouver, WA. Fundraising, Vancouver, Oregon, The Cure, Foundation, Cars, Autos, Car, Foundation Series

Oregon Chapter's first ever "Cars for A Cure" show and fundraiser! We had lots of cars, and lots of visitors, August 23, 2014 in Vancouver, WA.

Photos from Annual Cheri Woo Education Seminar on March 2014 in Portland. Portland, Oregon, Foundation, March, Education, Photos, Pictures, Foundation Series, Onderwijs

Photos from 13th Annual Cheri Woo Education Seminar on March 8, 2014 in Portland.