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    Palliative Care

    Palliative Care

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    My mother’s death was so wrenching that I applied to medical school to help change the way people die in America.

    Not Just a Death, a System Failure

    Courtesy of Hph hospice {something to think about!}

    Top five regrets of the dying

    Words of wisdom from Dr. Lanileary Web on how to help support those who are's so important as Child Life Specialist to provide services to families and children and to be their help both the living and dying say goodbye.

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    "Let's talk about dying" We can’t control if we’ll die, but we can “occupy death,” in the words of Dr. Peter Saul. At TEDxNewy he calls on us to make clear our preferences for end of life care -- and suggests two questions for starting the conversation.

    Let's talk about dying

    William Worden talks about the 4 tasks of mourning and distinguishes this from Elizabeth Kubler-Ross's work on the stages of dying.

    William Worden: The Four Tasks of Mourning

    elizabeth kubler ross on the language of the death and dying

    Dr. Elisabeth Kubler-Ross - Language of the Dying & Fear of Death

    The Near Death Experience - An Interview with Dr Elizabeth Kubler-Ross

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    The "Ring Theory" of 'kvetching' -- an interesting way to teach the "etiquette" of grief.

    How not to say the wrong thing

    As I find myself getting frustrated with regulators, payers, and hospital administrators as we strive to push palliative care, I remember this Ghandi quote. I think we're somewhere between fight and win.

    First they ignore you, then they laugh at you, then they fight you, then you win.

    With Jeb Bush running for president, his involvement with the Terri Schiavo case is being re-examined. This New Yorker article is a great review or check out Wikipedia for a summary --

    Learning About Jeb Bush from the Terri Schiavo Case - The New Yorker

    Here is an incredibly moving few paragraphs from the KevinMD blog as a physician relates her anger and grief when the medical team denies her sister comfort care at end of life in the hospital. Unfortunately, this is not a rare event. Have you seen this happen? What did you do?

    When doctors pass the buck: The ugly side of a shift-work mentality

    Nice piece from the AARP Bulletin on hospice care.

    Hospice Care - Ten Facts You Need to Know - AARP

    Nice graphic from JAMA to see the change in life expectancy over time, cause of death, and risk factors.

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    Increasing numbers of elderly, but few docs in training interested in geriatrics. Now is the time to double down on geriatrics and palliative care.

    As Population Ages, Where Are the Geriatricians?

    Now here is a teen volunteer experience that, I'm sure, would have had an incredible impact on me -- read or listen to this NPR Morning Edition story.

    'Today We Are His Family': Teen Volunteers Mourn Those Who Died Alone

    Despite all the talk of over-treatment and high costs, end-of-life care in the United States isn’t as bad as you might think.

    Is It Better to Die in America or in England?

    Great story about Nurse Lynn Kachuik who started nursing as a second career (after losing a 6 year old son to kidney disease) and now leads a 20-person strong palliative care team at Ottawa Hospital.

    Breaking the taboo known as palliative care | Toronto Star

    Anne Tumlinson Daughterhood Great Blog from Maria Shriver's site on the importance of having meaningful conversations with loved ones and being assertive with physicians regarding treatment goals.

    3 Tools for Caregivers & Loved Ones to Face Fear and Find Meaning at the End-of-Life Care Stage

    Archangel Raphael was known to coach and motivate healers, often whispering instructions in their ears. I am still awaiting my visit from the angel but in the meantime wanted to thank all the palliative care providers who have come before me and have given me inspiration, guidance, motivation, and the right words

    Raphael — Angel of Healing «

    This police horse came to see his former rider in hospice – so great to see that they allowed this.


    Paul Kalanithi wrote essays for The New York Times and Stanford Medicine reflecting on being a physician and a patient, the human experience of facing death, and the joy he found despite terminal illness.

    Paul Kalanithi, writer and neurosurgeon, dies at 37

    Providers need to be educated before they can have meaningful end-of-life discussions with patients and family members.

    Doctors need to learn about dying, too

    I am now face to face with dying. But I am not finished with living.

    Oliver Sacks on Learning He Has Terminal Cancer

    After her husband’s cancer spread to multiple organs, Reddit user Anukriti Mehta (whenlifegivesyoushit) was given the devastating news that there was nothing more doctors could do. He was her childhood sweetheart, the only man she had ever loved. He was 28 years old. Theodore* h

    Last Days: One Woman Fulfills a Final To-Do List With Her Dying Husband

    NPR interviews Dr. van Zyl regarding California's new physician assisted suicide law. I really like her answers.With more available palliative care, few will even want this option.

    A Palliative Care Doctor Weighs California's New Aid-In-Dying Law