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Palliative Care

Palliative Care

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In much of the world, the palliative care "tool-kit" doesn't even include a bed, let alone morphine.

In much of the world, the palliative care "tool-kit" doesn't even include a bed, let alone morphine.

Where / how most people would want to die.

Levels of palliative care -- with the shortage of certified palliative care providers, the challenge is to train/excite non-certified providers to offer high quality basic palliative care.

Irish Hospice Foundation

palliative care - Google Search

Light beyond the door -- Harvard Health Blog advocates for palliative care in cancer

As cancer death approaches, palliative care may improve quality of life - Harvard Health Blog

Kudos to the American Cancer Society and their ongoing support for palliative care.

Overruling My Father - End of life decision-making is never easy. Is it ever right to overrule the stated goals/wishes of a patient? This piece generated a ton of comments. I remain reeling as my ethics training and personal experience fight this one out.

Overruling My Father

Rx: The Quiet Revolution | Watch Online | PBS Video -- Interesting AMA sponsored documentary provides examples of patient/family centered medicine across the US. Emphasizes provider/patient relationships and community involvement -- what palliative care is all about.

Rx: The Quiet Revolution | Watch Online

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Live Life Happy

Verghese: Patients Have Two Hearts...... Dr. Verghese opens the American College of Cardiology Conference with an impassioned plea to hold on to the heart and soul of medicine. He acknowledges the challenge of the electronic medical record which, designed to achieve accurate billing, does little to improve patient care and consumes a tremendous amount of provider time.

Verghese: Patients Have Two Hearts

Their Dying Wishes - This New York Times blog piece is a great tribute to hospice volunteers everywhere.

Common Myths of Hospice Care Debunked | Next Avenue

Common Myths of Hospice Care Debunked

People say they would opt for less care if they had more knowledge of benefits and harms, studies show. Palliative care helps patients/families weigh the benefits / burdens of different treatment options. Patients often over-estimate benefits, and under-estimate burdens.

If Patients Only Knew How Often Treatments Could Harm Them

The call from my patient's daughter wasn't the first time a patient or family member had revealed to me a plan for an exit strategy.

Deciding On a Parent's Death

I could not resist this one!

A New York Times opinion piece well worth reading.... I was happy for all of us that this hideous struggle, which had extended past the most unreasonable expectations, was finally over. opinionator.blogs...; class="more-link">Read more...</a>

Finding Joy in My Father's Death

Here is an app designed to store, manage, and transmit living wills, POLST, DNR order, power of attorney, contact information, etc. The app can email or fax the information to a distant health care provider in minutes. It's from the American Bar Association and the documents are legal. You can store documents for multiple people so you can keep yours and your parents handy. Now, if we could only get more people to complete these documents in the first place.

My Health Care Wishes App

So... this is what an advance directives might look like if written by tech support.

Top 5 regrets of dying

How Long Have I Got Left? - A really interesting piece from palliative care/end-of-life perspective, particularly when we don't know when the end of life will be.

How Long Have I Got Left?

Hospice by the numbers

Andres' story: Finding a bond in his last journey

I am now face to face with dying. But I am not finished with living. Neurologist/author Oliver Sacks confronts his own mortality in this New York Times essay.

Oliver Sacks on Learning He Has Terminal Cancer

Superb debate on the Diane Rheem show regarding "death with dignity"legislation. Is it self-determination at its best, an ethical slippery slope, or a distraction from needed health care reform?

The Latest In The Debate Over "Aid In Dying" - The Diane Rehm Show

The overwhelming volumes of deaths during the Civil War created logistical, spiritual, and political challenges that transformed our views on death and dying. See WGBH American Experience | PBS . Death and the Civil War via this link.

WGBH American Experience | PBS . Death and the Civil War