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Rare Diseases, Worthy Patients

Rare Diseases, Worthy Patients

Meme Monday / At Patient Worthy, we love sharing news! But what we love more than sharing news is sharing is encouragement! Each Monday, we'll be posting memes for you to download, share on your boards, and pass along to those with rare diseases or just need a does of encouragement! #MemeMondays #MondayMotivation

25 Days of Chrismashanakwanzika 2015

25 Days of Chrismashanakwanzika 2015 / 25 Days of Winter Holiday Memes to Brighten Up Your Patientworthy Day!

Ankylosing Spondylitis (AS)

Ankylosing Spondylitis (AS) / Information about this form of arthritis. Learn more about it here.

Common Variable Immunodeficiency (CVID)

Common Variable Immunodeficiency (CVID) / Information about this type of primary immunodeficiency can be found here.

Cryopyrin-Associated Autoinflammatory Syndromes (CAPS)

Cryopyrin-Associated Autoinflammatory Syndromes (CAPS) / 3 subsets are included in this rare autoinflammatory group of diseases: Muckle-Wells Syndrome (MWS), Familial Cold Autoinflammatory Syndrome (FCAS), and Neonatal-Onset Multisystem Imflammatory Disease (NOMID).

Cystinosis / Cystinosis is an inherited disorder that leads to the build-up & crystallization of the amino acid cystine in the cells of the body. If left untreated, this crystallization can cause organ damage, kidney failure, or death.

Dystonia / Dystonia is a chronic movement disorder, and it's defined by involuntary muscle contractions that can worsen with voluntary activity. An equal opportunist, Dystonia doesn't confine itself to a particular age group, gender, or background.

Familial Hypercholesterolemia (FH)

Familial Hypercholesterolemia (FH) / FH is a rare, inherited form of very high cholesterol, often resistant to standard treatment practices for high cholesterol and usually results in a much higher cholesterol level in the blood stream.

GLUT1 DS / Glucose 1 Transporter Deficiency Syndrome, or GLUT1 DS, is a rare genetic disoroder that affects the nervous system and has no cure. Learn how patients, parents, and love ones are coping with this rare disease to live normal, productive lieves!

Hereditary Angioedema (HAE)

Hereditary Angioedema (HAE) / This rare genetic condition causes swelling (edema) in different parts of your body. Though it may seem like allergies, this condition is hereditary and not caused by outside forces (like a bee sting, for instance).

Inspiration / Motivation comes from within, but it often helps to have outside encouragement fuel the internal flame! Turn here for that encouragement1

Fun & Humor / "Laughter is the best medicine." Thought the origins of this quote is unknown, science has proven that there are many positive effects of laughing. Turn here to get your share of hilarity!

Complex Regional Pain Syndrome (CRPS)

Complex Regional Pain Syndrome (CRPS)

Cystic Fibrosis

Cystic Fibrosis

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