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  • Christy Hall

    Such a great way to spread awareness! My husband was also born with a heart defect & had life saving open heart surgery a year ago.

  • Jaclyn McBride

    Such a great way to spread awareness! Everyone check out this board!...Very Important to me, my Claire Bear is a CHD baby. But her little heart was repaired on 3/8/10 and now we have a wild, energetic 2 year old!

  • Kendra Vartia

    My baby cousin was born with hypoplastic left heart syndrome. He also has a CarePage. (The link here is not to him, however.) This is such a great way to spread awareness!

  • Deni Marie

    This is my son before his second open heart surgery to replace his pulmonary valve...born with a congenital heart defect, pulmonary atresia, congestive heart failure and ventricular septal defect...he has had 2 open heart surgeries, numerous procedures and keeps fighting the good fight!! Show your support for CHD Awareness by sharing his picture!! Thank you!

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CHD Awareness - More babies die from congenital heart defects than all other birth defects.

Kael Keoni Adams was born Feb. 18, 2004. He was born with a rare and complex Congential Heart Defect, Taussig-Bing Anamonly. Taussig-Bing is a type of Double Outlet Right Ventricle,(DORV), that is always accompanied with Transposition of the Great Arteries,(TA), Subpulmonic Ventricular Septal Defect,(VSD),and Coarctation of the Aorta. Unfortunately, Kael is not a text-book case, he also now has Pulmonary Stenosis,(PS) and Pulmonary Hypertension. This came as a result from his first open heart, the Arterial Switch. His PA,(Pulmonary Artery), is not growing the way it should. Kael has had 2 open-heart surgeries, 6 Heart Catheterizations, and everything from Colonstomy to Tonsillectomy, thus totaling 13 surgeries and/or procedures to date. We are currently waiting for his 3rd open heart, a valve replacement in the very near future.

Congenital Heart Defect Awareness

Congenital Heart Defect Awareness Bracelet by HopeFaithAndBeads, $13.99

Lucas Walters was born with a heart defect found when he was 4 days old. Doctors told us he had VSD. He spent several weeks in heart failure before being sent to Children's Hospital in New Orleans for open heart surgery to make the repair when he was 3 months old. Lucas has recovered amazingly and is a healthy and happy 17 month old! Our family is very passionate about CHD awareness and we have a strong desire to support other families coping with CHD.

Check out these books about Congenital Heart Defects

Every newborn needs screened for congenital heart defects.