Such a great way to spread awareness! Everyone check out this board! http://pinterest.com/ruth_h/the-faces-of-chd-congenital-heart-awareness-week-f/ http://www.carepages.com/carepages/YANCEYDUNCAN Congenital Heart Defect, Benefits Of, Blood Pressure, A Year Ago, Congestion Heart, 2 Year Olds, Cousins, Baby, Congestive Heart Failure
Kael Keoni Adams was born Feb. 18, 2004. He was born with a rare and complex Congential Heart Defect, Taussig-Bing Anamonly. Taussig-Bing is a type of Double Outlet Right Ventricle,(DORV), that is always accompanied with Transposition of the Great Arteries,(TA), Subpulmonic Ventricular Septal Defect,(VSD),and Coarctation of the Aorta. Unfortunately, Kael is not a text-book case, he also now has Pulmonary Stenosis,(PS) and Pulmonary Hypertension. This came as a result from his first open heart, the Arterial Switch. His PA,(Pulmonary Artery), is not growing the way it should. Kael has had 2 open-heart surgeries, 6 Heart Catheterizations, and everything from Colonstomy to Tonsillectomy, thus totaling 13 surgeries and/or procedures to date. We are currently waiting for his 3rd open heart, a valve replacement in the very near future.
Lucas Walters was born with a heart defect found when he was 4 days old. Doctors told us he had VSD. He spent several weeks in heart failure before being sent to Children's Hospital in New Orleans for open heart surgery to make the repair when he was 3 months old. Lucas has recovered amazingly and is a healthy and happy 17 month old! Our family is very passionate about CHD awareness and we have a strong desire to support other families coping with CHD.