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Community Post: 31 Random Facts About Ehlers-Danlos Syndrome

31 random facts about Ehlers-Danlos Syndrome (prounounced AY-lerz DAN-lowz), also known as EDS. It is a group of genetic disorders that are actually NOT rare – only rare to be properly diagnosed by…

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Community Post: 31 Random Facts About Ehlers-Danlos Syndrome

31 Random Facts About Ehlers-Danlos Syndrome..and people that have Chiari also usually have EDS knowledgeable is power !! Chiari Warrior's Life 💜

from BuzzFeed Community

Community Post: 31 Random Facts About Ehlers-Danlos Syndrome

May is Ehlers Danlos Awareness Month.  You find yourself trying to do something to bring awareness for EDS. You think what can I do? But what happens when you fall short of clever ideas? Instead you find yourself feeling like … Continue reading →

from BuzzFeed Community

Community Post: 31 Random Facts About Ehlers-Danlos Syndrome

DINET's full length POTS documentary is now available on YouTube! "CHANGES: Living with Postural Orthostatic Tachycardia Syndrome"

May is Ehlers Danlos Awareness Month.  You find yourself trying to do something to bring awareness for EDS. You think what can I do? But what happens when you fall short of clever ideas? Instead you find yourself feeling like … Continue reading →

1.  Ehlers-Danlos Syndrome is a very poorly recognized connective tissue disorder that is much more common than doctors realize currently.   It affects all parts of my body from head to toe in almo…