CHD awareness week Feb 7-14th After a perfect and uncompilcated pregnancy my daughter Delaney was born. My perfect little baby girl...or so we thought. After 30 hours of labor and lots of visitors it was finally time for me to sleep. I handed my daughter off to one of my best friends to hold while I tried to recover and get a couple hours sleep. I woke up to the sound of the nurse entering the room. "Time to give her a bath" she said. She took my baby from my friends hands, unwrapped her…

CHD awareness week Feb 7-14th After a perfect and uncompilcated pregnancy my daughter Delaney was born. My perfect little baby girl...or so we thought. After 30 hours of labor and lots of visitors it was finally time for me to sleep. I handed my daughter off to one of my best friends to hold while I tried to recover and get a couple hours sleep. I woke up to the sound of the nurse entering the room. "Time to give her a bath" she said. She took my baby from my friends hands, unwrapped her…

What a SUPER cute idea in anticipation of your wedding

What a SUPER cute idea in anticipation of your wedding

Jayden was born on Jan 21 2010 at SRMC at 7:30am. As we know Jayden was going to be born as a healthy little boy but it all went from good to bad when the doctor come and told us that something was wrong with Jaydens heart and as of now he thought it was a heart murmur but was have Jayden transported to WVU Childrens Hospital for more test. At noon the transport team was there to get Jayden and I had to say bye to my baby I never got to hold and only see for two seconds cause I had a…

Jayden was born on Jan 21 2010 at SRMC at 7:30am. As we know Jayden was going to be born as a healthy little boy but it all went from good to bad when the doctor come and told us that something was wrong with Jaydens heart and as of now he thought it was a heart murmur but was have Jayden transported to WVU Childrens Hospital for more test. At noon the transport team was there to get Jayden and I had to say bye to my baby I never got to hold and only see for two seconds cause I had a…

Caroline - Age 3 1/2   Hypoplastic Left Heart Syndrome  Caroline has undergone all three open heart surgeries related to this defect and is currently doing great!

Caroline - Age 3 1/2 Hypoplastic Left Heart Syndrome Caroline has undergone all three open heart surgeries related to this defect and is currently doing great!

Milo is truely a miracle child!  He was diagnosed with an aortic coarctation before birth and after birth many more defects were found although most of them were unrelated to his heart.  At a week old he underwent a 6 hour surgery to repair his coarc and his trachea.  Milo's future was still very uncertain but he fought and went on to thrive despite a tracheostomy and being ventilator dependant for 2 years.  Last fall Milo had a stint placed in his right pulmonary artery through a cardiac…

Milo is truely a miracle child! He was diagnosed with an aortic coarctation before birth and after birth many more defects were found although most of them were unrelated to his heart. At a week old he underwent a 6 hour surgery to repair his coarc and his trachea. Milo's future was still very uncertain but he fought and went on to thrive despite a tracheostomy and being ventilator dependant for 2 years. Last fall Milo had a stint placed in his right pulmonary artery through a cardiac…

Trey was born late June 2011 and at 11 weeks he was diagnosed with ALCAPA, Anomalous Left Coronary Artery from the Pulmonary Artery, on September 12, 2011.  He was in severe heart failure, his heart was working at 7%.  We had no idea, he looked fine.  The only problem he had was a strange breathing problem that only lasted a few minutes and had been attributed to a cold (an earlier NICU stay).  His condition is rare, 1 in 300,000.  He was on ECMO for 6 days and had an open chest for 10 days…

Trey was born late June 2011 and at 11 weeks he was diagnosed with ALCAPA, Anomalous Left Coronary Artery from the Pulmonary Artery, on September 12, 2011. He was in severe heart failure, his heart was working at 7%. We had no idea, he looked fine. The only problem he had was a strange breathing problem that only lasted a few minutes and had been attributed to a cold (an earlier NICU stay). His condition is rare, 1 in 300,000. He was on ECMO for 6 days and had an open chest for 10 days…

William was born in October 2010 and appeared to be completely  healthy. Two days later, as we were being discharged to go home from  the hospital, an observant nurse escorting us to our car noticed  Will's breathing was rapid and shallow and his color didn't look  right.  We returned with her to the nursery and as we watched through  the window, a sinking feeling began to set in that something was  seriously wrong.  A couple of hours later, we were following our 2 day  old baby in an…

William was born in October 2010 and appeared to be completely healthy. Two days later, as we were being discharged to go home from the hospital, an observant nurse escorting us to our car noticed Will's breathing was rapid and shallow and his color didn't look right. We returned with her to the nursery and as we watched through the window, a sinking feeling began to set in that something was seriously wrong. A couple of hours later, we were following our 2 day old baby in an…

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