CHD awareness week Feb 7-14th After a perfect and uncompilcated pregnancy my daughter Delaney was born. My perfect little baby girl...or so we thought. After 30 hours of labor and lots of visitors it was finally time for me to sleep. I handed my daughter off to one of my best friends to hold while I tried to recover and get a couple hours sleep. I woke up to the sound of the nurse entering the room. "Time to give her a bath" she said. She took my baby from my friends hands, unwrapped her fro...

I am a CHD Mom

He has had two open-heart surgeries. One diaphragm surgery. Two cardiac catheterizations. Countless echocardiograms, EKGs, blood draws and chest x-rays. He sported a feeding tube through his nose into his tummy for four months to help him gain weight. He has spent 75 days in the hospital. And he’s only five. He is not only our heart hero, he is our hero and his name is Luke. Luke was born with only one ventricle, which without intervention, would have failed very early in his lif...

Evangeline is our fifth blessing from the Lord. She was born in January 2008 with an undiagnosed Congenital Heart Defect; Transposition of the Great Arteries. At 10 days old, she presented with respiratory distress. In the ER she crashed and a team of a dozen doctors worked through the night to revive her tiny body as it went into shock. After diagnosing her broken heart, she was Life Flighted to MUSC in Charleston for open heart surgery. She has since battled Congestive Heart Failure, Chron...

William was born in October 2010 and appeared to be completely healthy. Two days later, as we were being discharged to go home from the hospital, an observant nurse escorting us to our car noticed Will's breathing was rapid and shallow and his color didn't look right. We returned with her to the nursery and as we watched through the window, a sinking feeling began to set in that something was seriously wrong. A couple of hours later, we were following our 2 day old baby in an ambula...

Chd Awareness!

Our son, Daniel, was post-natally diagnosed with several congenital heart defects at day 2 of life. He underwent open heart surgery at day 7 of life for coarctation of the aorta, several ASDs, and a large VSD at Children’s Hospital Boston. He is now three months old and recovering marvelously. He still has two outstanding congenital heart defects, a bicuspid aortic valve and parachute mitral valve, that are being closely monitored with possible future surgeries pending. We are so thankfu...

I almost cannot recall anything about what life was like before our family became a part of the CHD world. I will always remember the day my gorgeous newborn daughter was diagnosed with congenital heart disease, something I had honestly never heard of prior to that day. Ultrasounds had shown no abnormalities, no cause for alarm, nothing to even hint at what a sharp turn our lives were about to take. Nothing alerted my OB, Ava's heartbeat was loud and beautiful each time we listened to it at ...

Apple Suncatchers created by kids are the perfect autumn decor for your home! #firefliesandmudpies

Congenital Heart Defect CHD Awareness Pinback Button by PinMeDown, $7.00

christmas time

Congenital Heart Defect Awareness Week! FACT:Approximately 1 of every 100 babies are born with a CHD.

I love someone with a CHD.

Why I Give My Heart to CHDs (Congenital Heart Defect Awareness Week, Feb. 7-14) So want to make these for Emerson's "heart surgery birthday"- also cute for after a break up

CHD Awareness ( congenital heart defect)

Congenital Heart Defect Awareness Week Feb 7-14

When you look at 13 year old Jarod Davis, you will more than likely see a huge smile, and would never imagine all that he has had to go through in his short life. Born with a complex congenital heart defect known as Hypoplastic Left Heart Syndrome (HLHS), essentially half a heart, he started his life as a true fighter. He underwent his first open heart surgery at 2 days old, his second at 6 months old and third at 2 years old. Though his heart defect has been "repaired", it isn't "fixed" and...

chd awareness | CHD Awareness Week | Blog | Congenital Heart Defect Information

CHD awareness week

CHD Awareness

In honor of Congenital Heart Defects Awareness and my Aleah born with Pulmonary Atresia and Ventricular Septal Defect Our precious baby girl came into this world with a broken heart. We had to face the fact that when she came into this world God may take her to heaven because her heart had not developed properly before her birth. She was born with two congenital heart defects. She had her first open heart surgery at nine days old. This was a surgery just to buy her time before she would hav...