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    • Crystal Cline

      I miss my heart babies! Read her story--CHD awareness week Feb 7-14th After a perfect and uncompilcated pregnancy my daughter Delaney was born. My perfect little baby girl...or so we thought. After 30 hours of labor and lots of visitors it was finally time for me to sleep. I handed my daughter off to one of my best friends to hold while I tried to recover and get a couple hours sleep. I woke up to the sound of the nurse entering the room. "Time to give her a bath" she said. She took my baby from my friends hands, unwrapped her from her blanket, and noticed that her hands and feet were still purpleish. She asked to take her to the nursery for her bath and I agreed. Next thing I know I hear "CODE BLUE IN THE NURSERY, CODE BLUE IN THE NURSERY" From that moment on my life was NEVER the same! The next 36 hours where filled with absolute fear and terror. I never cried so hard in my life! I also had never really prayed to GOD before but that's ALL I did for the next few hours. I felt so weak, like I had no control, and if I lost my baby girl I would not make it. I literally felt like if she died that I would die too. It was the scariest day of my life. The next time I saw my baby she was on a ventilator and heavily sedated. I wasn't even allowed to touch her because the nurses didn't want her to get agitated. Looking at the monitors I remember her o2 levels were in the low 80's. That was way below the normal healthy range of 99-100% After running some tests, an echocardiogram, and sending over a transport team from CHOC, she was transported to the children's hospital. It was so hard not being able to go with her. I had to stay in one city while she was fighting for her life in another one. I didn't eat, I didn't sleep. I could only cry! After numerous phone calls from the doctor's at the children's hospital there was a diagnosis. My daughter had TAPVR, a rare congenital heart defect occurring in 1/15,000 babies. Basically the veins from her lungs were supposed to attach to her heart and they didn't. They rerouted themselves through her diaphragm and down into her inferior vena cava. They told me she needed emergency open heart surgery. My heart sunk. I was lost. I never prayed so hard. I prayed that if God had to take her that he take me too. I couldn't bare the thought of living without this child who I had just met. She was already the center of my universe! The next morning I was released from the hospital and rushed over to see her. she was so tiny and there were so many wires. I had about an hour with her until she was taken into surgery. Not knowing if this was going to be the last time I saw her alive, I kissed her forehead, my tears dripping all over her face, and told her I loved her and to be strong. The next few hours seemed like days. Then finally the doctor came out to tell me the good news. She had made it through! The surgery went well and I could go see her in about an hour. I thanked God and cried tears of joy! The road has not been without bumps since then but I thank God everyday for blessing my with such a miracle.

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