Sharonne Hayes, MD -- How social media helps us study rare diseases | Health Tech--When a team of cardiologists wanted to better understand an extremely rare heart condition called spontaneous coronary artery dissection (SCAD), they reached out to possible participants on patient-run social-media sites dedicated to women's heart health. Mayo Clinic cardiologist Sharonne Hayes says that in doing so, her team stumbled on a novel way to recruit participants who are notoriously hard to track down. Rare Disease, Extreme Rare, Mayo Clinic, Conditioning Call, Better Understand, Rare Heart, Coronary Arteries, Heart Conditioning, Heart Health
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SCAD-Spontaneous Coronary Artery Dissection A rare and deadly condition resulting in heart attack when blood flow to the heart is stopped by a tear. Two women who shared their stories on social networking sites found more women with the same problem. That's when they contacted Mayo Clinic to convince cardiologists to use the information gathered online to research this condition.
Speaking at a conference, "Through Each Other's Eyes: Sharing What We've Learned From Living With Cancer," Felicia Knaul, Ph.D., Associate Professor of Global Health and Social Medicine, a breast cancer survivor and advocate for people affected by cancer. ghsm.hms.harvard.... #BreastCancer #BCSM
A heart attack at age 35. That's not supposed to happen. The woman you're about to meet suffered what's called a spontaneous coronary artery dissection, or SCAD. It's a condition that's hard to diagnose and there's very little information available about it. Experts at Mayo Clinic have results from studies
Spontaneous Coronary Artery Dissection (SCAD): A Rare Heart Condition in Women A coronary artery dissection (also known as spontaneous coronary artery dissection, or SCAD) is a rare, sometimes fatal traumatic condition, with eighty percent of cases affecting women. Check out at:http://www.womenfitness.net/heart_condition.htm