Alexis Shapiro from Texas was diagnosed with a #craniopharyngioma at aged 10. Today, she is 12 & has developed hypothalamic obesity. Her family wants her to undergo a gastric bypass operation to potentially save her life. Here is her mom's appeal for financial support after her case was turned by insurance company: http://www.gofundme.com/3onp2g . News here: http://dailym.ai/1hPpGY2 (Also on other news sites)
Doctors Insultingly Said I Was Seeking Out Attention: They Were Dead Wrong
Ilana Jacqueline is the Managing Editor of the blog and patient community at The Global Genes Project. As a rare disease patient and a patient advocate, she is personally invested in the fight to raise awareness for cures, treatment options and faster and more affordable diagnostic tools.
Winter sore throat "tea"- In a jar combine lemon slices, organic honey and sliced ginger. Close jar and put it in the fridge, it will form into a "jelly". To serve- spoon jelly into mug and pour boiling water over it. Store in fridge 2-3 months !!!need to remember during musical season!!!
#HAAwards - Trailblazer Nominee - Sarah is one of the most caring, supportive people in Health Advocacy. She works to connect patients & health technology professionals & create meaningful interactions. She doesn't work solely with just her disease community, but supports every chronic patient out there. She always seems to be one step ahead in finding new health advancements and developing ideas to improve patient communities by utilizing technology - but never fails to keep the humanity in…
TJ Johnson was diagnosed with a #Craniopharyngioma on May 27, 2013, at the age of 2. He had undergone 3 surgeries so far at Wolfson Children’s Hospital in Jacksonville, Florida. Via http://www.gofundme.com/TJ-Johnson
Olive Garden Alfredo Sauce. 1 pkg Pasta (we like penne, instead of fettuccine) 1 stick of butter 1 clove of minced garlic 1 pint of heavy cream 1 cup of fresh Parmesan cheese 2 tbsp cream cheese 1/4 tsp salt 1/2 tsp white pepper
CrossFit Mamas - a blogger decided to do to cross fit as her husband has done for years... within 5 months she was in the best shape of her life and these workouts were done within 15/20 minutes 4-5x/week! She altered the workouts to be done at home and for the females!!!