Alexis Shapiro from Texas was diagnosed with a #craniopharyngioma at aged 10. Today, she is 12 & has developed hypothalamic obesity. Her family wants her to undergo a gastric bypass operation to potentially save her life. Here is her mom's appeal for financial support after her case was turned by insurance company: http://www.gofundme.com/3onp2g . News here: http://dailym.ai/1hPpGY2 (Also on other news sites)
TJ Johnson was diagnosed with a #Craniopharyngioma on May 27, 2013, at the age of 2. He had undergone 3 surgeries so far at Wolfson Children’s Hospital in Jacksonville, Florida. Via http://www.gofundme.com/TJ-Johnson
Blake Carpenter, a 14-year-old from Georgia, was diagnosed with Craniopharyngioma when he was 4 years old. He has endured 12 or 13 surgeries, and according to his dad, “this (2012) has been the best year he has had so far."
Shannon Moore (18) was diagnosed with a rare #craniopharyngioma when she was just nine-years-old. She underwent emergency surgery and has endured several operations over the years, plus treatment including radiotherapy and hormone replacement. Now studying music technology at Amersham & Wycombe College, she is certified blind and relies on a long cane to help her get about. Here, Shannon attends landmark Westminster event during National Brain Tumour Awareness month. (March 25th, 2015)
Carlisle Von Patrick (2 years old), Quezon City, Philippines, was diagnosed with a #craniopharyngioma in March 2013, at 1 year old. He has had surgery & according to his mom, Mayu (a pinner), will also undergo radiotherapy. Read his story here: http://mamayuxx.wordpress.com/ & http://www.gofundme.com/carlislevonpatrick (from related link (comment from Mayu): http://www.pinterest.com/pin/199284352235165200/ ). Mayu’s Pinterest: http://www.pinterest.com/mamayuxx/ .
MACEY BODILY, 7, of Yacolt, shows how tall she’s grown since her 2014 brain surgery to remove a large #craniopharyngioma. Macey’s parents describe her as their ‘sweet and easygoing’ daughter. (posted September 2, 2015)
A blog post by Allen Mallari on his encounter with Darren, an eight-year old kid from Bicol (Luzon Island, Philippines) who had been diagnosed with #craniopharyngioma. His friends and family fondly call him Kamote, a term or endearment lovingly given by his grandfather. (January 23, 2014, whitecoatchronicles.wordpress.com )
[Pituitary - Jul 2012] Surgery for #craniopharyngioma by doctors from Department of Neurosurgery, University of Erlangen-Nürnberg, Erlangen, Germany. (Abstract / Preview only; full text requires purchase/ subscription). Also here (abstract): http://www.ncbi.nlm.nih.gov/pubmed/22836237
Nile Mitchell, 5, was diagnosed with #craniopharyngioma and underwent a minimally invasive surgery (through the nose) performed by Dr. Jeffrey Greenfield at NewYork-Presbyterian/ Komansky Center for Children's Health ( http://weillcornellbrainandspine.org/faculty/jeffrey-p-greenfield-md-phd ). 98% of the tumor was removed. The residual 2% was stuck to the brain, where doctors will monitor it and, if necessary, prescribe radiation doses to kill it.
The pioneering new radiotherapy machine which can destroy brain tumours
Helen Lau from Luton (UK) was six weeks pregnant when she was diagnosed with a #craniopharyngioma in October 2009. She underwent surgery and in May 2010, she gave birth to son, Mylo without complications. But just a few months later, the tumour was back and even larger. Helen underwent radiotherapy at University College London Hospitals (http://www.uclh.org/Pages/home.aspx ).
21st Century Pediatric Cancer Sourcebook: CHILDHOOD CRANIOPHARYNGIOMA - Clinical Data and Practical Information for Patients, Families, and Physicians by National Cancer Institute (Author). (Edition 1.0 - March 2011) [Kindle edition - amazon.com]
Brandon, 16, from Airdrie, Scotland, was diagnosed with a #craniopharyngioma in May 2010 when he was 12 years old. The family raised £70,000 in 2010 for Brandon to have proton therapy and major brain surgery in Jacksonville, Florida. The proton therapy has, so far, prevented further growth of the tumour. (via Make-A-Wish UK)