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Joubert Syndrome Awareness Necklace
Joubert Syndrome and Related Disorders. Discusses Cogan syndrome, Leber Congenital Amaurosis, Bardet-Biedl syndrome, Meckel syndrome, and Oral-facial-digital syndrome.
The Joubert Syndrome & Related Disorders Foundation is an international network of parents who share knowledge, experience, and emotional support. The foundation offers a networking list, newsletter, and a biennial conference.
I LOVE this necklace, I won it at a silent auction. Best thing about this company, they donate 100% of proceeds to charity....if you shop, designate Joubert Syndrome as your charity of choice! :)