Eds Fibro, Chronic Pain, Eds Pots, Eds Awareness, Intense Pain, Fibromyalgia Pain, Invisible Illness, Back Pain, Daily Pain
Chronic pain: Do you have any idea what it's like to have never had a day without PAIN in your life?
I honestly can't remember that far back. If you live this way, just know you are never alone. If you are pain free, thank God, and try to understand the millions of us living with constant, never ending, debilitating chronic pain. #fibromyalgia #chronic #pain
#spoonie http://eds-awareness.livejournal.com #Autoimmune Diseases, Chronic illnesses, Chronic Pain
"I can't remember that far back". Been a long time. Over a year of daily pain. RA.
I wish I knew what even an hour without intense pain feels like. -Tiffanie
EVERYDAY IS A BATTLE FOR PEOPLE WITH CHRONIC PAIN
My life with chronic neck & back pain :(
Chronic Pain, Chronic Illness Health, Rare Disease, Angioedema Chronic, Illness Rare, Illness Awareness, Fibromyalgia Life, Chronically Fabulous
HAE, Hereditary angioedema, chronic illness, rare disease
You know you have an invisible chronic illness when....
You know you have a chronic illness
Support Chronic Illness Awareness.
Chronic Pain . Chronic Illness
Most people associate Multiple Sclerosis with a wheelchair. The fact is, only 1 in 5 people with MS are in a wheelchair and the vast majority of our symptoms aren't immediately obvious. Pain, numbness, pins and needles, spasm, blurred vision, tremour, memory problems, concentration problems, trouble swallowing, reduced dexterity to name but a few. Oh, and fatigue.
Invisable Disability, Fibro Life, Invisible Disabilities, Fibromyalgia Cfs, Fibromyalgia Chronic, Fibromyalgia Awareness, Invisible Illness, Invisible Disability, Fibromyalgia Depression
crps/rsd Thyroid Awareness hyperthyroid hypothyroid graves disease asthma cystic fibrosis Hashimotos disease... chronic illness invisible illness auto immune illness fibromyalgia and pain thrive and live again
Invisible disabilities make it much harder for people to comprehend Lyme Disease and Tick-Borne Diseases. This is why awareness, education, and prevention are KEY!!
Invisible Disabilities (actually i have both visible and invisible)
fibromyalgia is one invisible disability
I have fibromyalgia & depression
I HAVE AN INVISABLE DISABILITY
Sue Eds, Chiari Eds, Eds Fibro, Eds Ehlers, Eds Awareness, Eds Awarness, Eds Awesomeness, Eds Health, Eds Hms
What not to say to someone with chronic pain.
Chronicillness, Invisibleillness, Don T Understand, Don T Judge, Chronic Illness Quote, Chronic Migraine, Chronic Pain Quote, Don'T Judge, Invisible Illness
invisible illness~ DON'T JUDGE THAT WHICH YOU DO NOT UNDERSTAND!!! You don't need to understand to show support, just say 'I Believe you'. A little compassion can make a huge difference. ☺️
invisible illness~ DON'T JUDGE THAT WHICH YOU DO NOT UNDERSTAND!!! It is so upsetting to be disrespected with comments like these...&likely to earn you a one way ticket out my door
invisible illness~ DON'T JUDGE THAT WHICH YOU DO NOT UNDERSTAND!!! #cervicaldystonia
Dealing with Chronic Migraines and / or Chronic Pain / Invisible Illnesses!!
CHRONIC MIGRAINE TRUTH | Please don't judge....
Don't judge what you don't understand
invisible illness- don't judge
Chronic pain suffers
Fibromyalgia Ra, Fibromyalgia Chronic Pain, Migraine Headache, Chronic Illness, Chronic Migraine, Invisible Illness, Fibro Chronic, Chronicpain Chronicillness, Fibro Migraines
Eds,hms, fibro, neuropathy, depression,arthritis,asthma,ileoanalpouch,spoonie, chronicpain & chronicillness
Migraine!!! Help us help others! http://MigraEase.com #migraine #headache #cluster #natural I hope you find a solution. For pain relief, that naturally sounds good!! premium UK Cannabidiol "CBD" Oils and CBD vape e-liquids. Share and like them at on.fb.me/1fqFYu5, Try it ?
Migraine!!! Help us help others! http://MigraEase.com #migraine #headache #cluster #natural
fibro ,chronic pain, chronic fatigue, multiple autoimmune diseases
Chronic Migraine pain.
fibro, migraines, ICP
Chronic pain with Lupus
Chronic Pain, Disabling Chronic, Rheumatoid Arthritis, Autoimmune Disease, I Ve Heard, So True, Invisible Illness, Chronic Fatigue
I have heard all of these - RA Chicks, Rheumatoid Arthritis and Autoimmune Arthritis for rachicks.com
Things not to say to people with an autoimmune disease. I know many people don't mean what they say to sound mean, but when you live with chronic pain, tiredness etc. you are already fighting your OWN mind, and it just hurts more when others say these things to you....
SO TRUE!! Lord some days I would love nothing more than to be able to be more active with my precious grand baby. --As a fibromyalgia & chronic fatigue sufferer I've heard them all! #Fibromyalgia #health #quotes
idratherbenapping: missgingerlee: Things NOT to say to someone with a disabling chronic illness. Okay everyone - reblog/retweet this-stat! Reblogging like a boss. Seriously though, all of these things should never, ever be said. ~I think I’ve posted this before, but I had to post this again. Carry on.~
All of these statements (and, 'if you'd just exercise more) stalled me from getting treatment for nearly two years. Now, when I hear them, grrrrrr! Chronic Illness / Invisible Illness
Chronic pain /I recently offended someone on Facebook for posting this. "This too shall pass." Seemed acceptable to them. No, it won't pass, ever. I don't want to hear it... People should educate themselves about chronic illness...
Chronic Pain... Warning!!! Things NOT to say to someone with a disabling chronic illness.
Truth. Dysautonomia. Chronic Illness. Invisible Illness.
Chronic pain..... So true
Chronic Pain, Spoonie Life, Chronic Illness, Fibromyalgia Chronic, Social Events, Invisible Illness, Chronic Fatigue, Spoonies Fibromyalgia, Fibromyalgia Life
Made by www.organize-ability.tumblr.com [Batteries in various stages of power against yellow background. Title text: “Effects of Social Events on Spoonies.” Battery 1 is ¾ full with caption: “Getting ready.” Battery 2 is ½ full with caption: “1-3 hours at event.” Battery 3 is ¼ full with caption: “1-3 hours at event.” Battery 4 is empty with caption: “Travel home.”]
Sounds like me...I never get more than 6 spoons......chronic illnesses support https://joannekelly41.wordpress.com/
Think about it. It takes A LOT for ppl with chronic illness to go to an event. So if they are there, really know that they sacrificed so much to let you know that they care about you. Sometimes they can't show up bc their "battery" is on empty, but don't mistake that for them not caring.
chronic illnesses support https://joannekelly41.wordpress.com/ So true for Multiple Sclerosis that I go thru.
Rheumatoid Arthritis, Chronic Pain, ME, Fibromyalgia, Chronic Fatigue, Lupus.
Effects of social events on spoonies | Chronic illness | Fatigue
chronic illnesses support https://joannekelly41.wordpress.com/
One spoon at a time spoon handle bracelet - spoonie charm - hand stamp - Whispering Metalworks
Hand Stamped, Spoonie Charm, Handle Bracelet, Bracelet Spoonie
One spoon at a time spoon handle bracelet - spoonie charm - hand stamped - birthstone or diagnosis ribbon color - chronic pain illness heart
One spoon at a time spoon handle bracelet by WhisperingMetalworks
One spoonie at a time bracelet Etsy
WhisperingMetalworks, 50.84 usa
Siamese Cat, Chronic Pain, Autoimmune Disease, Siamese, Chronic Illness Cat, Invisible Illness, Chronically Ill, Fibromyalgia Suck
Chronic Illness Cat ~ #crohns #crohnsdisease #chronicillness #invisibleillness #ulcerativecolitis #crohnscolitis
chronicillnesscat: [Image: 6-piece blue colored background with a Siamese cat with blue eyes. Text reads: “Call to make doctor’s appointment. Receptionist asks for reasons for appointment. Where to begin?”] Every single time… I love you chronic illness cat.
Chronic illness cat. Take the naproxen and sleep and wake up with a horrible stomach ache, or just don't sleep...ever. #spoonie #chronic #pain
Chronic Illness cat. A MILLION TIMES THIS! If you don't need it, DON'T USE IT! You make the lives of those with legitimate serious health problems and chronic pain issues so much harder and frustrating.
These are killing me...Chronic Illness Cat - Spoon Theory - invisible Illness - Stiff Persons Syndrome
[Image: 6-piece blue colored background with a Siamese cat.Text reads: “Get prescribed antibiotics. Yeast infection.”] Not really a chronic illness thing, but my immune system sucks because of a chronic illness, so I’m constantly being prescribed different antibiotics.
That's almost every morning! #Autoimmune Diseases, Chronic illnesses, Chronic Pain
Chronic Illness Cat - Spoon Theory - invisible Illness - Stiff Persons Syndrome
Ehlers-Danlos Syndrome / chronic illnesses / chronic pain. Chronic illness cat
Chronic Pain, Chronic Illness, Pain Syndrome, Rsd Crps, Pain Scale, Mcgill Pain, Fibromyalgia Chronic, Crps Rsd, Back Pain
The McGill Pain Index scale. While of course there are many chronic pain conditions not listed here, it's interesting to note just how high fibromyalgia rates (I'd have put it a touch higher even). #chronically #ill #illness #health #fibro
The McGill Pain Index. This is the REAL pain scale that medical professionals use to determine a patients
The McGill Pain Index scale. While of course there are many chronic pain conditions not listed here, it's interesting to see how high fibro is. #chronically #ill #illness #health #fibro
Chronic Pain Scale - It's amazing that those ppl who go through years of training, still don't get that their idiotic "normal ppl" pain scale does not apply to ppl w Chronic Pain!!
On this scale, the following are considered LESS painful than fibromyalgia: sprain fracture arthritis toothache after-shingles nerve pain non-terminal cancer phantom limb pain chronic back pain The following are considered MORE painful than fibromyalgia: Childbirth (with training) Amputation of finger/toe Childbirth (with no training) CRPS (Complex Regional Pain Syndrome)
I have CRPS/RSD and fibromyalgia. I've also given birth four times (with training). On the McGill Pain Index, the following are considered LESS painful than fibromyalgia: sprain fracture arthritis toothache after-shingles nerve pain non-terminal cancer phantom limb pain chronic back pain The following are considered MORE painful than fibromyalgia: Childbirth (with training) Amputation of finger/toe Childbirth (with no training) CRPS (Complex Regional Pain Syndrome)
McGill pain index for measuring chronic pain, fibromyalgia, CRPS, RSD, EDS, etc.
Chronic Pain Scale - Back Pain ugh.. I hate my back
Chronic Pain, Chronic Illness, Spoons Today, Fibromyalgia Spoon, Rheumatoid Arthritis, Multiple Sclerosis, Invisible Illness
Spoon Theory. How are spoons are used up. Spoonie quotes. Discover handmade items made by people living with Chronic Illness, Disability or Caring for those affected. http://www.consciouscrafties.com/
The Chronic Illness Spoon theory is Perfect for people who need help understanding how hard it is for their loved ones to perform simple tasks each day. Here is a chart to put it in a different perspective....
This is great way to explain to someone how the spoon theory works. I've already got it printed out and it's going in my "Me Book" in which I put information about my invisible illnesses to help my friends and family understand what my daily battle is.
Spoons! Great analogy of living g with chronic pain! http://www.butyoudontlooksick.com/articles/written-by-christine/the-spoon-theory/
Chronic Illness - how will I use my spoons today?
spoons ... Chronic pain, invisible illness
fibromyalgia spoon theory - Google Search
The Spoon Theory for chronic illness
Chronic Disease, Chronic Pain, Chronic Illness, Dust Wrapper, Rare Disease, Lyme Disease, Autoimmune Disease, Crohn S Disease, Crohn'S Disease
phenomenalhaley.wordpress.com Pulmonary Hypertension rare disease awareness. #crohns #crohnsdisease
POTS~ Postural Orthostatic Tachycardia Syndrome~ Dysautonomia~ Chronic Illness
phenomenalhaley.wordpress.com Pulmonary Hypertension rare disease awareness.
Chronic Illness #warrior #fighter #survivor #livingaintkilledmeyet
Chronic illness. I have to remind myself of this all the time
Interstitial Cystitis chronic fatigue chronic pain
Yup! I hate that stupid pain scale. I have said it is a 10 before and the docs just laughed at me saying I would be dying if it were that bad. How rude!
Accurate Scale, Chronic Illness, Pain Quotes, My Life, Fibromyalgia Pain, Illness Health, Illness Pain, Chronicpain Fibromyalgia, Health Chronic
Rate my pain? The same pain I live with every day. Sometimes it's less like rabid badgers gnawing on me and more like a sharpening steel honing my nerves raw. Sometimes it's spread out and like a blanket made of stone and barbed wire. Sometimes it's concentrated spikes of pure hot hate. But it's always there. Rate it? I rate it a 10 out of 10 of ruining my life.
Seriously, pain scales should be this cut and dry. chronic illness ,health ,chronic pain, Fibromyalgia, Autoimmune illnesses
Seriously, pain scales should be this cut and dry. #chronically #ill #illness #health #chronic_pain And yet, both have to be lived with. Regardless of how bad.
Seriously, pain scales should be this cut and dry. #chronically #ill #illness #health #chronic_pain
chronic illness pain sickness autoimmune
A more accurate scale
Great pain quote
And possibly a day or two more CMT - Charcot Marie Tooth
Chronic Pain, Lupus Fibromyalgia, My Life, Chronic Illness Pain, Fibromyalgia Chronic, So True, Invisible Illness, Chronic Fatigue, Chronicpain
This is so true and other people just don't get it: over do it today & tomorrow is cancelled! Invisible chronic illness, and chronic pain! (mkc from Karen No)
And possibly the next day and the next -- Life with Fibromyalgia/ Chronic Pain - but I dont have the option to be out of commission
And possibly the next day and the next -- Life with Fibromyalgia/ Chronic Pain REALLY SUCKS!!!!!
Fibromyalgia, MS and Chronic pain This is so true, U pay for it the next day big time.
The "cycle" when you live with chronic pain. It stinks. #pain #chronicpain
And possibly the next day and the next -- Chronic Pain/Invisible Illnesses
This is the story of my life. Chronically ill means chronically fatigued. I can't dry my hair for more than a few minutes, two hours of walking (if I can manage it) mean a full day in bed the next day. I'm so beat I can't move. We all need to work together to find a cure. This is not what life should be about. I can't remember the last day I felt really good - like I could out and do everything I want to do for a whole day and then get up and do it again the next day, and the next, and the next... ~CarrieKellenberger #SpondylitisAwarenessMonth #walkyourasoff2015 #WYASO2015 #autoimmune awareness #healthadvocacy
Invisible chronic illness/pain So true! #RSD/CRPS #ChronicPain
Invisible chronic illness/Lupus/Fibromyalgia/Chronic Pain
Invisible Illness, Chronic Pain, Chronic Illness, Lupus Awareness, Fibromyalgia, Endometriosis, POTS, Hypermobility, Quotes, Autoimmune
Autoimmune Disease Quotes, Illness Autoimmune, Lupus Quote, Illness Lupus, Diseases Suck, Awesome Lucky, Autoimmune Disorders, Autoimmune Quotes
We are so AWESOME. even our immune systems can't get enough of us... Invisible Illness, Chronic Pain, Chronic Illness, Lupus Awareness, Fibromyalgia, Endometriosis, POTS, Hypermobility, Quotes, Autoimmune
Invisible Illness, Multiple Sclerosis, Chronic Pain, Chronic Illness, Lupus Awareness, Fibromyalgia, Endometriosis, POTS, Hypermobility, Quotes, Autoimmune
We are awesome! Even our own immune system can't get enough of us. Invisible Illness, Chronic Pain, Fibromyalgia
Autoimmune Disorders... Invisible Illness, Chronic Pain, and Chronic Illness.
Invisible Illness, Chronic Pain, Chronic Illness, Lupus, Quotes, Autoimmune
Invisible Illness, Chronic Pain, Chronic Illness, lupus awareness
Invisible Illness - Chronic Illness - Autoimmune - Crohns
We are just so awesome...lucky us!
Autoimmune diseases suck.
Pain Illness, Chronic Pain, Pain Sucks, Lupus Fibromyalgia, Fibromyalgia Chronic, Fibromyalgia Pain, Invisible Illness, Chronic Fatigue
I genuinely have zero recollection of this feeling. #chronic #pain #illness #chronically_ill #health
yep... Fibromyalgia Chronic Fatigue Syndrome Pain ...If I ever woke up and was not in pain, I would think I was dead.
I genuinely have zero recollection of this feeling. #chronic #pain #illness #chronically_ill #health <--- Wow! This whole thing is so accurate!
I genuinely have zero recollection of this feeling. #chronic #pain #illness #chronically_ill #health #ankylosinspondylitis #fibromyalgia
yep... Fibromyalgia Chronic Fatigue Syndrome Pain SO TRUE AND THANK GOD THERE ARE MORE CASES S WE CAN TALK TOGETHER COUD YOU IMAGINE IF YOU WERE THE FIRST ONE WITH IT OR EVEN THE FIRST THOUSAND THAT WOULD HAVE SUCKED IM COUNTING MY BLESSINGS
yep... Fibromyalgia Chronic Fatigue Syndrome Pain
Totally Me ~ Lupus/Fibromyalgia
yep Pain sucks.
"I don't know how you put up with being in pain all the time." "Easy. I don't have another option."
Pain Illness, Chronic Pain, Rheumatoid Arthritis, Truth, Fibromyalgia Pain, So True, Invisible Illness, Fibro Sucks
This is the truth. There isn't another option. Those of us who have lupus or other chronic pain know exactly what it's like on a daily basis.
only option. #chronic #pain #illness #chronically_ill #health Don't know how much longer I can take it though...
When being strong is your only option. #chronic #pain #illness #chronically_ill #health Because the only other way is permanent it's death!!!!
When being strong is your only option. Truth #chronic #pain #illness #chronically_ill #health
Chronic pain/illness. Keep fighting! So true and so sad at the same time
Ehlers-Danlos Syndrome / chronic illnesses / chronic pain
A spoonful of strength garden marker hand stamped - spoonie - invisible illness - chronic pain - rustic silver spoon - inspirational quote
Strength Garden, Hand Stamped, Spoonie Invisible, Marker Hand, Spoonie Friends, Spoonie Quotes, Garden Markers, Silver Spoons, Inspirational Quotes
A spoonful of strength garden marker hand stamped - spoonie - invisible illness - chronic pain - Nice to know this is affordable. One of the ladies from married at first sight show is selling "spooning" jewelry $300 for a spoon bracelet; although her concepts different- it's for representation of her love for spooning her hubby..it kinda makes me sad that she's a nurse & she didn't know what a "spoonie" was & if we wanted to buy her stuff, most of us that are ill can't afford it @ that price
A spoonful of strength garden marker spoon for our fellow fibro spoonie friends
A spoonful of strength garden marker hand by WhisperingMetalworks
For all my spoonie friends out there -- a spoonful of strength.
A spoonful of strength garden marker
No matter how often I say this very thing, despite my diagnosis, doctors love to tell me I'd feel better if only I took this little pill. Ehlers-Danlos Syndrome is a genetic connective tissue disorder that causes chronic pain, fatigue, poor scarring, bruising, hypermobility, frequent dislocations, gastrointestinal issues, early onset osteoarthritis and osteoporosis, autonomic system dysfunction and many other symptoms and comorbid conditions. There is no treatment or cure.