Explore Rare Disease, 3 Years, and more!

MPS Society Video . . .This is a devastating disease. . I lost my son right before his 5th Birthday. You don't usually know your child has it until they are around 2 or 3 years of age. Wear Purple on May 15th to spread awareness! Forever in my heart, Kyle Scott Cottey!!!!

This is a devastating disease. I lost my son right before his Birthday. You don't usually know your child has it until they are around 2 or 3 years of age. Wear Purple on May to spread awareness!

A Knoxville mom is raising awareness about the rare disease with which her little boy suffers called Hunter Syndrome. Only one in 100,000 children has it.

A Knoxville mom is raising awareness about the rare disease with which her little boy suffers called Hunter Syndrome.

The Fight For The Clubbs Boys: MPS AWARENESS DAY

We are wearing Purple to raise awareness for MPS and all the different MPS diseases! The boys have MPS II also known as (Hunter syndrome) .

Turning the Camera on Myself: Gaucher Disease - YouTube Watch her story when she is diagnosed in her 15 years old age . Support them for their life

Turning the Camera on Myself: Gaucher Disease

My Photo

We are wearing Purple to raise awareness for MPS and all the different MPS diseases! The boys have MPS II also known as (Hunter syndrome) .

Niemann-Pick disease - YouTube

Niemann-Pick disease - YouTube

Simon Ibell - The Man Who Refuses to Quit #truestories #longreads

A rare illness pushed Simon Ibell to the limit. A relentless, no-quit attitude helped him push back.

Pascrell Fights for Leider Boys

Jason and Justin Leider, ages 7 and of Elmwood Park, NJ have been diagnosed with a rare genetic disease called Hunter Syndrome, where an enzyme the body n.

Hereditary Angioedema, or HAE, A Few Facts

Hereditary Angioedema, or HAE, A Few Facts

Irish MPS Society video  #MPS #Awareness

An awareness video for a rare condition known as MPS and the Society set up in Ireland to help families and there loved ones suffering from this condition.

SAVE A LIFE! Sign up for a free kit to make a swab of the inside of your mouth to become a bone marrow donor!

Be the Match website - the donor registry website for the National Marrow Donor Program in the US

This is our beautiful son Hunter, he has Fragile X syndrome (full  mutation) but despite his rare condition he is the sunshine of our  lives.

This is our beautiful son Hunter, he has Fragile X syndrome (full mutation) but despite his rare condition he is the sunshine of our lives.

Pinterest
Search