There’s more to see...
Come take a look at what else is here!
They used Pinterest to plan a dream trip
Join Pinterest to find (and save!) all the things that inspire you.
Creating an account means you’re okay with Pinterest's Terms of Service and Privacy Policy.
50+
billion Pins
to explore
15
seconds to
sign up (free!)
Visit site
  • American Family Children's Hospital

    Tyler Hall overcame odds that were heavily stacked against his survival. Tyler was ultimately diagnosed with life-threatening heart failure resulting from a rare condition known as MCAD deficiency, a genetic disorder that substantially inhibits the body's ability to use fat as a fuel. http://www.uwhealthkids.org/our-american-family-childrens-hospital/amazing-kids-amazing-stories-tylers-story/35434

Also on these boards

Related Pins

This little girl lost her life to an undiagnosed MCAD deficiency, don't let this happen again! Learn about MCADD screening as a part of NBS.

Jilly Bean, dress and sash. Adelaide Original. 6mo to 6yrs. $43.00, via Etsy. So cute!

Such a good idea! Much better than the "do not disturb" sign I am using now:) Just wary of announcing I have a baby in the house to strangers, though.

This is basically what we did with j and it was awesome. Saving to refer back to with A soon!

Baby monitor for iPhone! Best, easiest, cheapest, and how to do it. This Mom used an actual security camera and the result was better quality for a much lower price. It's better than any camera marketed as a baby monitor that I've seen.

How to potty train your toddler early. Think of the money you'll save on diapers (or the water you'll save on cloth diaper laundry!)

Baby Pink Petti Romper and Feather Headband by butterflybabybands, $38.00 Love the embelishments! Shannon Mac

beautiful tutu and hair bow :)

"Instead of grieving that Piper has a metabolic condition that requires us to watch carefully, we choose to celebrate that newborn screening detected her MCADD, and that she is still with us living a happy and healthy life." ~ Julie, Mom to Piper