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  • Peace Be With You

    so so true (even beloved family)

  • Disability Ninjas

    A lot of people I used to socialize with dropped me like a brick. I was really #hurt at first. But now I've made some real #friends. #Family #SupportBoard #DisabilityNinjas #Support #Understand #SupportGroup #Forum #Bond #DisabilityNinjas #Disability #ChronicIllness #ChronicPain #InvisibleIllness

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No, I'm not okay with things. :/ I just love you so much I deal with it. :(

Expressing chronic pain is like trying to show emotion without a face. It does not matter how hard you try, people will still not understand that just because it does not show, it does not mean it is not there.

I always say it feels like someone pulled my plug. Now I know - I run on batteries.

It can be hard to say no when I really DO want to go and do something, but I know my body and some days the fun is worth paying the price for, some days I just can't. People don't understand to go to their 2-hour "event" will cost me at least 48 hours.

This always happens - I just flip the paper over and write the rest on the back.

It won't cure your lupus, but it will have some interesting side effects.

My symptoms might not make sense, but that's what happens when your brain get's fucked up.

I never realized how important having your health is until I no longer enjoyed it. Chronic pain stole it from me. Now every day is a challenge to be faced.