It can be hard to say no when I really DO want to go and do something, but I know my body and some days the fun is worth paying the price for, some days I just can't. People don't understand to go to their 2-hour "event" will cost me at least 48 hours.
Expressing chronic pain is like trying to show emotion without a face. It does not matter how hard you try, people will still not understand that just because it does not show, it does not mean it is not there.
#fibromyalgia, Autoimmune Diseases, Chronic Pain I lost myself somewhere along the way...and I will never get that part of me back again