Also on these boards
I have interstitial cystitis....not sure about EDS, although I have SO may of the symptoms EDS is related to Chiari
Ehlers Danlos Syndrome • My daughter suspected she had EDS before I'd even learned what it was. When I learned of the possible surgery complications and other preventable issues, I encouraged her to get screened. It explains why she can't "grow out of" of POTS, as we'd hoped when she was first diagnosed with that.