15 year old girl taken from parents by hospital/DCF who allege that girl does not have mito, but rather pysch illness. DCF placed her in psych ward where she has remained for 9 months. Parents allege kidnapping. This is actually NOT uncommon---has happened across the US for years, due, in part, to the nature of mitochondrial disease which is difficult to dx, and easy to "fake" by parents. Doctors/hospitals worry about MSBP, malingering and over-medicalization. Where is the truth here...

Mitochondrial Disease or Medical Child Abuse? www.slate.com #FreeJustina

Evolving story of girl dxed with mitochondrial disease taken from parents and hospitalized in psych ward for 9 months. Hospital and DCF claimed she had somatoform disorder and parents were abusing her. Original diagnostician is world reknown mitochondrial disease specialist. Doctors who redxed her with psych illness work for CHB, no. 1 hospital in the US. Who's right; who's wrong. Almost doesn't matter because now the child is undoubtedly scared for life by egotistical "experts."


The Truth About #Food #Additives #Infographic

Boy with mitochondrial disease builds elaborate lego hospital with help of Make-a-Wish.

the bitter truth

An 18-year-old Galesburg teen is finishing up her first ArtPrize as an artist, hoping her piece will inspire others.

Trailer now out for Rina's movie. Rina was teen girl with mito who wrote story adapted for film by Diablo Cody (of Juno fame).

What Autism Isn't ... Red Flags for Mitochondrial Disease

typography subway art In the United States, more than 50 million adults suffer from diseases in which mitochondrial dysfunction is involved. Mitochondrial dysfunction is found in diseases as diverse as cancer, infertility, diabetes, heart diseases, blindness deafness, kidney disease, liver disease, stroke, migraine, and the toxicity of HIV and other drugs. Mitochondrial dysfunction is also involved in aging and neurodegenerative diseases such as Parkinson and Alzheimer dementia.

So cute AND good cause. Diana, fabric look familiar? :) BABY Size DNA Headband for Mitochondrial Disease Awareness - Benefits Mitochondrial Disease research. $12.00, via Etsy.

Studies have also linked mitochondrial dysfunction to autism spectrum disorders, cardiac issues and even some cancers. Scientists believe that in focusing on mitochondrial dysfunction, they may be able to devise effective treatments and potential cures for mitochondrial disease and help the millions of people who suffer from the above mentioned diseases.

Mito Disease

Mitochondrial Disease

Meet Your Mitochondria #infographic #Health Mitochondria are small, complex and vital. Meet Your #Mitochondria and learn more about our core technology http://ow.ly/vFcY2


Mitochondrial Disease Awareness

Excellent video done by a child describing herself and her family, who suffer from mitochondrial disease. It shows the wide diversity of symptomalogy in mitochondrial disease, even within the same family.

Mito Disease Awareness

Parts of the body Mitochondrial disease affects.