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I'm a 24yr old CHDer with Tricuspid Atresa, Hypoplastic Right Heart Syndrome and other medical issues. I was not diagnosed till I was 11 weeks old and in severe heart failure. I was VERY lucky to be diagnosed and still alive as my Pulmonary Artery was almost 4x the size and could have burst. I've beaten many odds that were against me. I've been through 2 open heart surgeries (22yrs Post Fontan), many procedures, heart catherizations, and hundreds upon hundreds of tests, pokes, and…

You never know how much your life can change in a split second, until it happens to you. 1 in 100? How come we never knew about the most common birth defect?? Our son Zeb is 1 in 100 and our life has never been the same. He was born "healthy" or so we were told; at 4 weeks old he was in full blown heart failure. He has a CHD called Aortic Stenosis and a mitral valve deformity with insufficiency. He has had 3 heart surgeries at MUSC/Charleston, 2 closed heart and 1 open heart. He is our…

1 in 110 babies are born with some form of a congenital heart defect. Many are not diagnosed at birth and go home only to suffer heart failure. Some parents learn of their babies diagnosis from the coroner. If you are pregnant, or know someone who is, ask for a pulse ox test before you leave the hospital. It's cheap, non-invasive and can save lives.

Heart kids rock! 1 in 100 babies are born with a broken heart, just like my babies. More info on chd's at http://www.corashopesanddreams.org

My first child and only daughter was born in January 2000. She was diagnosed three days after birth with Tetralogy of Fallot. She had her TOF open heart surgery when she was five-months-old. She had a pulmonary valve replacement in 2010. We thought we were done with heart surgeries and were relieved; however, in October of 2011 she was diagnosed with severe left ventricular dysfunction at a routine cardiology checkup. Her left ventricle was only working at 13%. She underwent test after…