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Trey was born late June 2011 and at 11 weeks he was diagnosed with ALCAPA, Anomalous Left Coronary Artery from the Pulmonary Artery, on September 12, 2011. He was in severe heart failure, his heart was working at 7%. We had no idea, he looked fine. The only problem he had was a strange breathing problem that only lasted a few minutes and had been attributed to a cold (an earlier NICU stay). His condition is rare, 1 in 300,000. He was on ECMO for 6 days and had an open chest for 10 days…

My son Benjamin was born Feb 21, 2006. He had three individual heart defects (Truncus Arteriosis type I, complete AV septal defect, and a coarctation of the aorta), Ben also had Down syndrome. We knew about the TA and the AV defect before he was born, and found the coarc after. We were given surgical options and they were horrendously poor....so we chose to take Ben home on Hospice care a week after he was born. We were told he would live two weeks, if we were very fortunate. But…

Leyda was born on 2005 with HLHS, a hypoplastic right lung and various other cardiac anomalies. She was prenatally diagnosised. Leyda came to us in 2006, at 17months old. Our adoption was final in 2008. She had her first 2 surgeries and g-tube placement, essentially alone. For her 3rd (Fontan) we stayed in the hospital with her every day....all 103 days. She suffered a stroke in the 24 hours following the Fontan, but eventually recovered 95%. She was able to get off oxygen and g-tube feeds…

Good Vibes HERE (The Good Vibe)

Everything is going to be ok in the end. If it's not ok, it's not the end Good to remember.

21 Famous Quotes To Help You Rise (& Recover) From Failure

"She has been through hell. So believe me when I say, fear her when she looks into a fire and smiles." — Anonymous

Rubi was born May 2011 at 38 weeks, weighed 4lbs 13oz, and was diagnosed as having a VSD in a postnatal echo within minutes of birth. For 3 months we watched for breathing and eating issues and we gave her her daily dose of Lasix. We saw her cardiologist bimonthly and prayed that the hole would close itself. At 3 months, the cardiologist said she would need surgery so on September 9th we did the scariest thing of our lives: put our little girl in the hands of a heart surgeon at Denver…

30 Helpful Life Quotes

Getting over a painful experience is much like crossing monkey bars. You have to let go at some point in order to move forward. -C.S. Lewis.<<<<unless ur flexi

35 Beautiful Inspirational Quotes

beautiful-inspirational-quotes-026 #MediumMaria #Tarot #Numerology

(said by original poster): Sydney's CHD: Tricuspid atresia / Pulmonary atresia, HRHS Sydney's Surgeries: B-T Shunt ( at 5 days old), Bidirectional Glenn (6 months old), Fontan (3 years old) Today: Sydney is 4 years old and has bounds of energy! She just had her last surgery (Fontan) July 2011 and I'm proud to say she is doing great! She is the best part of my life and her beautiful "broken heart" has definitely made mine whole!