Personalized Necklaces with Meaning by Lisa Leonard Designs
"Broken, but stitched up and stronger than before. It's a constant reminder that even though you may feel broken, there are rays of light and beauty to be found—life is imperfect but if we look closely there is beauty!" Love, love, love. Beauty in the brokenness necklace, Lisa Leonard Designs
Our son, Dale Perryman Sholl, was born with a handful of complex congenial heart defects. He has a form of HLHS where his ventricles didn't form right and they are reversed. So far he has had the DKS Sano, then recently had his Glenn procedure and in another year he will have the Fontan. He is doing SO well right now, finally learned to walk and now there's no stopping him. AND he seems to have adopted his father's passion for NASCAR! Since he was named after Dale Earnhart Sr. :o)
Landon was diagnosed with Pulmonary Artresia & Intact Ventricular Septum. Because of this his right ventricle never fully developed. Landon came into the world on April 3rd 2012 weighing 5Ibs 13oz He was immediately taken to the NICU. During his first two weeks of life, he went thru a heart cath and two open heart surgeries. Today Landon is 2 months old and you would never know from looking at him that there is anything wrong.
Jack was born on January 11, 2012 with a Congenital Heart Defect called Hypo-plastic Left Heart Syndrome. We were told that he would undergo 3 surgeries, one of which would take place within the first few weeks of his life. By the grace of our awesome God, Jack didn't have to have the first surgery. We left the hospital after only 6 days in the NICU. He has been thriving since we brought him home. Right now, his doctors think his first surgery, the Glenn procedure, will take place in June.
This is Madison Savannah, born with HLHS. She's 11 years old & you'd NEVER know she's been through 3 open heart surgeries unless you were told. We found out about her condition when we had to rush her back to the ER less than 24 hrs after being discharged from the maternity ward, she came within 2-4 hours of losing her life & it was the scariest day of mine. She had her first operation at 10 days old, her chest was left open for 7 days & closed on Mother's Day, 2000. She's only been hospitali
The Best and Most Beautiful Things
My son, Bryson Young, was born with transposition of the great arteries, coarctation of the aorta, Taussing- Bing, VSD, ASD. We had no idea that our son had heart problems until he was born blue and almost died. By the time he was life-flighted to a hospital hours away he was in “profound shock”. He received open heart surgery when he was 14 days old and spent the next four months on a ventilator, fighting for his life. By the grace of God, he was finally healed and his now a spunky, crazy two-y
Our beautiful Claire was diagnosed in utero with Tetralogy of Fallot and Pulmonary Atresia. The months leading up to her birth were scary and nerve-wracking, but we feel so blessed to have known ahead of time so that we could be as prepared as possible for this special little girl. Claire was born on 10/11/10 and was pink, but had a rough start after suffering a cardiac arrest on her 2nd day of life, due to a pericardial effusion. The next week and a half were extremely difficult, but she pull
Shevoni "Chevy" Charles was born June 16th, 2011 with Hypoplastic Right Heart Syndrome. Her combination of defects included Pulmonary Atresia with IVS, Tricuspid Valve Hypoplasia and severe coronary sinusoids. Chevy underwent her first open heart surgery at the Children's Hospital of Atlanta at Egleston when she was only 6 days old with the BT Shunt and completed her 2nd surgery in November 2011 with the Glenn procedure. Throughout her battled she's endured two cardiac catherizations, a collapse
Someone saved my life tonight...
Meet Jay. Jay is our handsome little heart hero - he's spunky and spirited and full of life. Most folks who meet him have no idea that in his short life he's endured congestive heart failure, two heart surgeries, a middle of the night heart attack followed by an hour of a half of unsuccessful CPR, and a week on ECMO (a form of heart-lung bypass). He has faced many complications along his road to recovery, but is now a walking, talking, giggling, tool-toting miracle. His favorite toy is a cha
After the loss of our second child and over a year of secondary infertility, we secretly thought that God owed us a perfect pregnancy and birthing experience with our third child and maybe even a baby that was a good sleeper and a good eater... ha. We didn't necessarily get those things, but we wouldn't trade any of it for our Ruby, born July 25, 2011 with congenital heart defects. Ruby had joined the statistics, she was the 1 out of 100. We struggled with the feedings and sleeping, we were in a
Anniston is a beautiful 2 1/2 year old girl who was born with the CHDs Interrupted Aortic Arch and VSD. When she was three days old, she had surgery to connect her aorta and to repair her VSD at the Children's Hospital of Philadelphia...a wonderful place! Anniston acquired an infection in her incision after surgery, so we were in the hospital for one month. She had a heart cath at 4 months to open her aorta which had narrowed significantly after her open heart surgery. She had a major stroke
Ethan was born on Aug 24,2006. We knew from our 20 week ultrasound that he would be born with Hypoplastic Left Heart Syndrome. He crashed during a cath lab procedure the day he was born and came back to us on life support. After 6 days in the NICU he had his first open heart surgery, with two more to follow before his second birthday. He is an amazing little boy who is full of life and smiles. He loves Super Mario and playing with his siblings. Other than taking aspirin everyday and tuckering out a little bit quicker than other kids his age he is pretty much the same as any other 5 year old. His name is Ethan Drew and he is the face of CHD. <3
annie's in my heart
On March 30, 2010, Annie Grace Sabin was born with multiple heart defects. Her official diagnosis was tetralogy of fallot with absent pulmonary valve. Over the course of her four-month life, Annie endured four major surgeries (two requiring bypass) and multiple minor surgeries. She was taken to the brink of death several times and continually amazed us with her will to live. For four months, she fought valiantly to be here with us. Her fight allowed us precious time to memorize tender detai
It is Congenital Heart Disease Awareness Week this week which coincidentally falls in the middle of HEART Month! I wanted to give a brief glimpse of my heart story to help put a face to CHD. I was born A LONG time ago ~ like 1971 with a hole in my heart Ventricular Septal Defect (VSD). At age 23 just a few days after my birthday I underwent emergency open heart surgery to repair the original hole that was in there between the bottom chambers of my heart (VSD) and to rebuild a leaflet of my ao
November 27, 2010 I gave birth to our stillborn son, Michael. I was 21 1/2 weeks pregnant on Thanksgiving Day when the ultrasound confirmed we had lost him. He had a congenital heart defect known as Ebstein's Anomaly that caused his heart to swell, so much so that there was too much pressure for his little frame to handle. Losing Michael was the hardest thing I have ever had to go through (and am still going through) but it has opened my eyes to the pain so many women suffer from during t