Ehlers Danlos Syndrome...

Tips, tricks and ideas on ways to make things easier for fal. Whether it's cute clothes to match her AFOs or medical equiptment for her in home therapy room or general supplies
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Ask someone with Ehlers Danlos Syndrome...Ask a CHILD with Ehlers Danlos syndrome then get back to me about pushing that research for a cure

Ask someone with Ehlers Danlos Syndrome...Ask a CHILD with Ehlers Danlos syndrome then get back to me about pushing that research for a cure

Ehlers-Danlos Syndrome (the connective tissue disorder I have)  Great video explaining how my little Fally suffers...help spread awareness

Ehlers-Danlos Syndrome (the connective tissue disorder I have) Great video explaining how my little Fally suffers...help spread awareness

Heart of Africa Medical Pendant...the Company is in Britain, but OMG I want it! They deliver worldwide.....Hmmmm.... fally needs this

Heart of Africa Medical Pendant...the Company is in Britain, but OMG I want it! They deliver worldwide.....Hmmmm.... fally needs this

MAY is NATIONAL EHLERS DANLOS SYNDROME AWARENESS MONTH.. Here is a something I made... It may not be the same for all E.D.S people..

MAY is NATIONAL EHLERS DANLOS SYNDROME AWARENESS MONTH.. Here is a something I made... It may not be the same for all E.D.S people..

MAY is NATIONAL EHLERS DANLOS SYNDROME AWARENESS MONTH.. Here is a something I made... It may not be the same for all E.D.S people..

MAY is NATIONAL EHLERS DANLOS SYNDROME AWARENESS MONTH.. Here is a something I made... It may not be the same for all E.D.S people..

I've always known I was strong just didn't know  how strong I really was!

I've always known I was strong just didn't know how strong I really was!

Ehlers-Danlos Syndrome is a rare syndrome that can cause a defect in the sound conducting mechanism of the middle ear, and which may result in hearing loss.

Ehlers-Danlos Syndrome is a rare syndrome that can cause a defect in the sound conducting mechanism of the middle ear, and which may result in hearing loss.

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