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Useful items for kids with spinal muscular atrophy (type 1 / SMARD)

Collection by Yahnatan Lasko • Last updated 2 weeks ago

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Spinal muscular atrophy (SMA) is a degenerative neuromuscular disease which severely restricts a child's ability to move. SMA is the number one genetic killer of infants. It is classified as type 1 when diagnosed between 0 and 6 months of age. This is a list of items which parents of SMA type 1 children have found are useful to have. (Check out the SMA Adaptability Facebook group here: https://goo.gl/xo9V3e) For a similar list of toy ideas: https://goo.gl/wCwRKH

Yahnatan Lasko
  Swimming Aids, Swimming Gear, Aquatic Therapy, Adaptive Equipment, Medical Equipment, Pool Activities, Swimming Equipment, Pool Floats, Cerebral Palsy

water therapy floats, aquatic therapy floats, swim rings, therapy swim rings

Triangular shaped ring made from polyester fabric and filled with polystyrene beads. Velcro opening that allows for waist adjustment. Easy to put on and take off. Offers stable support for trunk exercises. Provides under arm support as well as shoulder and neck support. Can be used in conjunction with Hip Float (item 9308). Inside Circumference Size: 28 inches

  Spinal Muscular Atrophy, Stick On Mirror, Personal Safety, Office Environment, Safety And Security, Black Mirror, Glass Design, Rear View

Computer Mirror, HengSheng Mirror for Personal Safety and Desk Security Rear View Monitors or Anywhere (6.7" x 2.95")

Computer Mirror, HengSheng Mirror for Personal Safety and Desk Security Rear View Monitors or Anywhere (6.7" x 2.95"): Amazon.com: Industrial & Scientific

  Outdoor Lounge, Outdoor Chairs, Outdoor Living, Outdoor Pergola, Tanning Chair, Folding Lounge Chair, Sun Chair, Beach Cart, Playroom Furniture

MacSports 2-in-1 Outdoor Beach Cart + Folding Lounge Chair w/Lock | Tanning, Sunbathing, Lounging, Pool, Backyard, Porch | Portable, Collapsible with All-Terrain Wheels | Blue w/Lock

Buy MacSports 2-in-1 Outdoor Beach Cart + Folding Lounge Chair w/Lock | Tanning, Sunbathing, Lounging, Pool, Backyard, Porch | Portable, Collapsible with All-Terrain Wheels | Blue w/Lock: Lounge Chairs - Amazon.com ✓ FREE DELIVERY possible on eligible purchases

  Outdoor Lounge, Outdoor Chairs, Outdoor Living, Outdoor Pergola, Tanning Chair, Folding Lounge Chair, Sun Chair, Beach Cart, Playroom Furniture

MacSports 2-in-1 Outdoor Beach Cart + Folding Lounge Chair w/Lock | Tanning, Sunbathing, Lounging, Pool, Backyard, Porch | Portable, Collapsible with All-Terrain Wheels | Blue w/Lock

Buy MacSports 2-in-1 Outdoor Beach Cart + Folding Lounge Chair w/Lock | Tanning, Sunbathing, Lounging, Pool, Backyard, Porch | Portable, Collapsible with All-Terrain Wheels | Blue w/Lock: Lounge Chairs - Amazon.com ✓ FREE DELIVERY possible on eligible purchases

Power Turn Elite™ Lateral Rotation Mattress System- Model 9800 Lateral Rotation Therapy with True Low Air Loss The Power-Turn™ Elite Mattress System combines two clinically effective therapies:. Air Mattress, Mattress Covers, Turn Left Turn Right, Spinal Muscular Atrophy, Pressure Ulcer, Spinal Cord Injury, System Model, Home Safety, Quilt Cover

Power Turn Elite™

Power Turn Elite™ Lateral Rotation Mattress System- Model 9800 Lateral Rotation Therapy with True Low Air Loss The Power-Turn™ Elite Mattress System combines two clinically effective...

Mor/Ryde StepAbove 3 Step - 30"-33.5" Step Height, 8" Step Rise, 26"-28" Door Width (STP-3-27-02H) MOR/ryde Spinal Muscular Atrophy, Easy Install, Type 1, Kids, Things To Sell, Young Children, Boys, Children, Boy Babies

Mor/Ryde StepAbove 3 Step - 34-36" Step Height, 9" Step Rise, 26-28" Door Width (STP-3-27-05H)

Buy Mor/Ryde StepAbove 3 Step - 34-36" Step Height, 9" Step Rise, 26-28" Door Width (STP-3-27-05H): Body - Amazon.com ✓ FREE DELIVERY possible on eligible purchases

Automatic Electric Hammock Rocker Never too much, never too little, your RockitMan™ gets that swing right every time. Engineered to give that necessary nudge to your hammock at just the right time and pace, RockitMan™ lets you truly and completely relax for as long as you prefer. RockitMan™automatically detects the natural rhythm of your hammock or swing and adjusts to match that rhythm without any effort from you. Simply attach RockitMan™ to your favorite hammock and rock on. Canopy Swing, Hammock Swing, Hammock Chair, Porch Swing, Outdoor Seating Areas, Kick Backs, Relax, Effort, Cows

RockitMan™ Home

The RockitMan™ Universal Rocker is the best automatic rocker for hammocks, hammock swings, porch swings, hammock chairs, and more. If you relax on a hammock and you want it to rock automatically, the RockitMan™ is perfect for you.

Rio Gear Outdoor Foldable Hammock Lounger - Blue Sky/Navy RIO Gear Hammock Swing Chair, Swinging Chair, Foam Pillows, Camping Chairs, Beach Chairs, Steel Frame, Outdoor Chairs, Outdoor Fun, Rio

Rio Gear Outdoor Foldable Hammock Lounger - Blue Sky/Navy

Amazon.com : Rio Gear Outdoor Foldable Hammock Lounger - Blue Sky/Navy : Sports & Outdoors

Teslong Ultra Thin Otoscope, 3.9mm HD Visual Ear Cleaner Ear Scope Camera with 6 LED Lights, Earwax Cleaning Tool and... Spinal Muscular Atrophy, Ear Cleaner, Ear Wax, Linux, Type 1, It Works, Cleaning, Lights

Teslong Ultra Thin Otoscope, 3.9mm HD Visual Ear Cleaner Ear Scope Camera with 6 LED Lights, Earwax Cleaning Tool and Washable Speculum Tips, Works with Android, Winows, Mac & Linux

Buy Teslong Ultra Thin Otoscope, 3.9mm HD Visual Ear Cleaner Ear Scope Camera with 6 LED Lights, Earwax Cleaning Tool and Washable Speculum Tips, Works with Android, Winows, Mac & Linux on Amazon.com ✓ FREE SHIPPING on qualified orders

On-Stage 100663 Spinal Muscular Atrophy, Music Stand, Speaker Stands, Compass, Knob, Type 1, Stage, Packing, Bag Packaging

On-Stage 100663 Height Knob (4 PACK) For SM7211B

Buy the On-Stage 100663, Height Knob (4 PACK) for SM7211B at Full Compass Systems. 0% Financing and Free Shipping on thousands of items!

Always be prepared for on-the-go potty emergencies with the Go Potty. This Potty opens quickly and easily so it can be ready in snap. Toddler Potty, Kids Potty, Potty Seat, Potty Chair, Toilet Training, Potty Training, Training Pants, Portable Potty, Best Potty

OXO Tot 2-in-1 Go Potty for Travel - Gray

Amazon.com: OXO Tot 2-in-1 Go Potty for Travel - Gray: Baby

Order Kiefer Neoprene Float Swim Collar at Kiefer Aquatics. Soft and comfortable to wear, perfect for flotation therapy or deep water exercise. Quick release adjustable slide fastener eliminates Velcro which can damage swimwear. Flotation Therapy, Spinal Muscular Atrophy, Water Aerobics, Pool Floats, Swim Shop, Swimming, Exercise, Workout, Type 1

Kiefer Neoprene Float Swim Collar, 12 x 14 x 4-Inch, Black

Amazon.com : Kiefer Neoprene Float Swim Collar, 12 x 14 x 4-Inch, Black : Sports & Outdoors

Zip quickly into your shoes in style. Fast, fun, easy, empowering—BILLY goes universal, combining fashion with function and adaptive with mass market. Navy Women, Black Canvas, Your Shoes, Lady In Red, Fashion Shoes, High Top Sneakers, Footwear, Slip On, Boots

BILLY Footwear | Fashion and Function For All

BILLY Footwear creates shoes with zippers designed to be fashionable and functional, revolutionizing how shoes are put on and taken off. Incorporating universal design, BILLY shoes embrace inclusion. No more velcro. No more stuffing your feet into shoes. Step in unobstructed with our drop-in solution and zip.

Introducing Fire TV Blaster - Add Alexa voice controls for power and volume on your TV and soundbar (requires compatible Fire TV and Echo devices) Alexa Voice, Famous Brand Shoes, Personal Security, Fire, Your Voice, Home Automation, Tv, Type 1

Fire TV Blaster - Add Alexa voice controls for power and volume on your TV and soundbar (requires compatible Fire TV and Echo devices)

Amazon.com: Fire TV Blaster - Add Alexa voice controls for power and volume on your TV and soundbar (requires compatible Fire TV and Echo devices): Amazon Devices

Buzzy Mini Personal Striped Vibrating Ice Pack – Non Invasive Pro Cold Pad Device for Single Patient Home Injections, First Aid, Itching – Home Use Tool for Diabetes, Needle Pain Relief Clever Inventions, Buzzy Bee, Unique Baby Shower Gifts, Natural Pain Relief, 25 Days Of Christmas, Drug Free, Used Tools, Pain Management

Buzzy Mini - Pain Relief for First aid, injections, Aches, Injuries, and More (Striped)

Buy Buzzy Mini - Pain Relief for First aid, injections, Aches, Injuries, and More (Striped) on Amazon.com ✓ FREE SHIPPING on qualified orders