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My Mom's Illness Journey

My mom had been diagnosed with many illness over the years. She had tonsil cancer (in year 2000), glaucoma, hepatitis B, knee pains, high blood pressure and now…
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My mom have been fitted with both plastic and silicon nasogastric (NG) tube. In the article, I would discuss about the difference between a silicon and plastic NG tube, and why I choose silicon tube for my mother. There is also a video linked there. To view pins related to tube feeding, please go to my profile> Saved> My Mom's Illness Journey> Tube Feeding.
In most countries, if a person with Alzheimer's or dementia can no longer eat on their own without choking due to difficulty swallowing, tube feeding is not recommended... and hosipice is called in. But for the same condition in stroke and ALS, patients are placed on tube feeding. Why such different in practice? My mom have been on tube feeding since June 2021 and it improved her life. Visit the link for more FAQ. For similar pins, go to my profile> My Mom's Illness Journey> Tube Feeding.
I placed my mom who have end stage Alzheimer's on tube feeding since June 2021. The FAQ and other FAQs available in the link below are compiled based on my own experience. Hope it helps you. To view more pins like this, please visit my profile, go to Saved> My Mom's Illness Journey (board)> Tube Feeding (section)

Tube Feeding

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In 2017, I resigned from my corporate job to be a full time caregiver. In the blog post link, I explain what made me came to that decision when I could actually afford to hire care instead of quitting my relatively successful job. Now in 2022, it has been all worth it. To view more pins like this, please visit my profile, go to Saved> My Mom's Illness Journey (board)> Caring for My Mother (section)
Recently I got static shock (mild electricity jolt) when I attempt to touch my mother whom I am caring for. The static got more frequent and greater intensity. I tried remedies from the web but none of them work. My Thai friend told me a very simple remedy (it has a spiritual cause). Please check out the blog post for the steps on how to overcome static shock. To view more pins like this, please visit my profile, go to Saved> My Mom's Illness Journey (board)> Caring for My Mother (section)

Caring for my Mother

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I placed my mom who have end stage Alzheimer's on tube feeding since June 2021. The FAQ and other FAQs available in the link below are compiled based on my own experience. Hope it helps you. Please visit link for more comprehensive FAQs. For more pins like this, you may visit my profile> My Mom's Illness Journey (board)> Alzheimer's / Dementia and Nasogastric Tube Feeding.
Doctors in hospitals in Thailand would place a patient on tube feeding once they cannot swallow be it due to stroke, motor neuron or Alzeimer's/dementia and they provide support and teach caregivers. From experience, I do NOT find it is prolonging suffering. I placed my mom who have end stage Alzheimer's on tube feeding since June 2021. To view more pins like this, please visit my profile, go to Saved> My Mom's Illness Journey (board)> Alzheimer's/Dementia and Nasogastric Tube Feeding (section)
Hand restraints/special mittens for Alzhmeimer's/dementia patients on tube feeding - Spiritual Wellness & Health Blog

Alzheimer's / Dementia and Nasogastric Tube Feeding

20 Pins
In 2017, I resigned at the peak of my career to become a full time caregiver for my mother, who was diagnosed with liver cirrhosis. She was yellow with jaundice all over. Her ankles and abdomen swelled with ascites (bloating). Was told she had about 3 months to live based on her outer appearance. So I left my job to care for her full time and she got better. To view more future pins like this, please visit my profile, go to Saved> My Mom's Illness Journey (board)> Liver Cirrhosis (section)
Baraclude entecavir 0.5mg that my mom is taking

Liver Cirrhosis

2 Pins
More than 20 years ago, my mom underwent 36 doses of radiation treatment for her tonsil cancer. The radiation produces a lot of side effects, many of them long term. In the article I would share on how my mother managed the side effects such as loss of salivary glands, difficuly swallowing, etc. For more information, please go to the blog post link or alternatively, you may visit similar pins in my profile> Saved> My Mom's Illness Journey> Tonsil Cancer
I wanted to write this article after having a friend (aside from my mother) who also contracted tonsil cancer in her late 20s and she also had to dealt with suppressing a lot of injustices in her life. But she has to toughen on just to survive and feed her family. The scenario may not apply to all but it can be a working point. To view more pins like this, please visit my profile, go to Saved> My Mom's Illness Journey (board)> Tonsil Cancer (section)
My mother was diagnosed with tonsil cancer in year 2000. It was devastating as she had just retired and was looking forward to able to enjoy her life. She had a neck operation and had complications, then 36 doses of radiation causing her to lose all her teeth and wiped out her salivary glands. I share on adaption my mom made over the years to live with the side effects.. To view more pins like this, please visit my profile, go to Saved> My Mom's Illness Journey (board)> Tonsil Cancer (section)

Tonsil Cancer

3 Pins
My mom had glaucoma on her left eye which by the time it was diagnosed in 2007 was quite severe. In mind body connection, glaucoma is linked to unshed tears. Meaning tears that are supposed to come out due to sadness and disappointment but were being suppressed. So gradual build up of pressure leads to illness like glaucoma. To read on my mother's story, please click on the link below. This pin is saved in my profile> Saved> My Mom's Illness Journey> Glaucoma

Glaucoma

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Yes, there is a danger of choking, injury and aspiration. I would briefly go through the three as part of the FAQ series- please visit the link to view more. Even though there are possible risks, it is lifesaving for those who are unable to manage their secretions either by swallowing to the stomach or spitting out. If not suctioned out, it would harden and may choke the person. For more similar pins, please visit my profile> My Mom's Illness Journey> Dysphagia and Phlegm Suction
You would need to request a doctor or a nurse to teach you in order to do suction with home. It would get better with practice. Visit the link below for full listing of FAQs. For more pins like this, you may visit my profile> My Mom's Illness Journey (board)> Dysphagia & Phlegm Suction (section)
I have compiled a series of FAQs related to phlegm suction based on my experience of performing phlegm/mucus suction for my mother few times daily for more than 1 year. My mother has Alzheimers and since June 2021, her ability to swallow is affected hence we have phlegm issue. Visit the link below for full listing of FAQs. Or to view more pins like this, please visit my profile, go to Saved> My Mom's Illness Journey (board)> Dysphagia & Phlegm Suction (section)

Dysphagia & Phlegm Suction

8 Pins
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